← Return to Anyone take new drug Camzyos (mavacamten) for HCM?
DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
Replies to "Is this medication available in the United States through the Mayo Clinic. I’m a Vietnam veteran..."
A Cardiologist that is "licensed to prescribe Camzyos" (very few are licensed on that medication) can prescribe you that medicine in the USA. The medication cost around $8,500 per month so you need to have some kind of health insurance with prescription benefits plan to see if they cover it. The insurance will direct you to a mail pharmacy that will mail you the medicine as far as I understand only in the USA, but find out if they may have changed it. The medication blocks the protein that feeds that muscle heart (called septum) to grow so the muscle starts getting thinner instead of softening. I felt in only 1 week a big difference in my heart with the angina being gone almost right away but my muscle was grown 2.2 cm which is almost blocking the whole lower part of my heart so now in 3 months is 1.4 cm so I am doing better. It does require the first 3 months a monthly echocardiogram then after that every 3 months echocardiogram so the doctor can calibrate the right dosage for you (5 mg, or maybe 10 mg, etc.) the doctor will adjust the dosage for you.
Hello @kalu2512,
First of all...thank you for serving your Country. It is because of brave men like you we are free!
Camzyos is a new drug approved for the treatment of Hypertrophic Obstructive Cardiomyopathy. It works by binding to myosin protein in the heart and allows the heart to relax.
Camzyos is available in the US, but not through the Mayo Clinic. Because Camzyos has some serious risks, it is part of a restrictive program and both you and your healthcare provider must be enrolled to participate. You can only get Camzyos through pharmacies that are also enrolled in the program called REMS (Risk Evaluation and Mitigation Strategy)
I am not familiar with the diagnosis of hardening of the left ventricle...do you know the actual medical term for this?