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Synovial sarcoma: what treatments might I expect?

Posted by karthikapuliveeran453 @karthikapuliveeran453, Jul 13, 2022

Hi ,
My friend is diagnosed with synovial surcoma. He is in india .he is planning to come to us for treatment . Can you please provide details about the procedure , duration of treatment and expected charges

Thanks

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 23 3:14pm
In reply to @eulpaula "Has anyone dealt with a synovial Sarcoma diagnosis?" + (show)
@eulpaula

Has anyone dealt with a synovial Sarcoma diagnosis?

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Hi @eulpaula, welcome. You might be interested in these related discussions:
- Synovial sarcoma: what treatments might I expect?
https://connect.mayoclinic.org/discussion/synovial-surcoma/
- Synovial spindle cell sarcoma, left lung. Anyone else have this?
https://connect.mayoclinic.org/discussion/synovial-spindle-cell-sarcoma-left-lung-anyone-else-have-this/
Is this a recent diagnosis for you? May I ask how it was discovered and where in the body?

REPLY
copper23 | @copper23 | Jul 29 4:02pm
In reply to @ellengrubb "My Synovial sarcoma began in my calf in 2021. I had it removed twice, 18 months..." + (show)
@ellengrubb

My Synovial sarcoma began in my calf in 2021. I had it removed twice, 18 months apart. Had 25 radiation treatments after first removal. After 2nd resection, it had metastasized to my lungs. I opted for no chemo or other chemical treatments - chose quality of life (I’m 75). I was told the cancer in the calf had to be removed before a resection of the metastasis in the lung…and the only way to get it all was to amputate below the knee.
I’ve been doing some immunotherapy, which I believe as slowed the growth.
I’ve been feeling great, living life fully and am happy for the last 9 months. In the last couple weeks, pain is becoming prevalent in the calf, but control it only with Aleve.
At my stage in my life, I believe this was the best decision.
I wish you happy research and that you will feel confident with your decisions.

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I am waiting test results but I really think I have some kind of soft tissue sarcoma. I woke up lat Tuesday morning with a large lump on my left thigh and by Friday I had small lumps on my left and right forearm. I Will be 76 in 12 days and at this stage I really just want to enjoy life. It's been good so far. All the women in my family died between the ages of 75 and 80. Especially if it is in both my arm and leg. I understand how you feel and thank you for sharing.
Copper 23

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 6 2:02pm
In reply to @copper23 "I am waiting test results but I really think I have some kind of soft tissue..." + (show)
@copper23

I am waiting test results but I really think I have some kind of soft tissue sarcoma. I woke up lat Tuesday morning with a large lump on my left thigh and by Friday I had small lumps on my left and right forearm. I Will be 76 in 12 days and at this stage I really just want to enjoy life. It's been good so far. All the women in my family died between the ages of 75 and 80. Especially if it is in both my arm and leg. I understand how you feel and thank you for sharing.
Copper 23

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Hi @copper23, any update? How are you doing?

REPLY
copper23 | @copper23 | Aug 8 4:31pm

It's a game of hurry up and wait. I couldn't get an appointment for a biopsy until August. 26th. Anxiety is through the roof. Thank you for asking about me.

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