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@paulb2112

I’m praying for you too, you have quite a story and even though it’s been a tough ride, I find it to be inspiring. For me as I told you, 61, this is not the road of uncertainty I wanted. We are all given three main things we can die of: fire, car accident and cancer. I never wanted it to be that. The word scares me. Keep at it, keep fighting you have a solid dozen more years to go! If we could just learn to be present, we wouldn’t worry so much about the future. But every new rash and bump will just pull us out of that safe feeling and thrust us back to fear. Thats what we will always deal with.

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Replies to "I’m praying for you too, you have quite a story and even though it’s been a..."

I have been diagnosed with CTCL about two years ago. I have been keeping it under control with the triamcinolone cream and narrowband UVB treatment. It has done a good job of controlling it. Still have a few rashes and red spots. The disease has focused my life and I don’t procrastinate and do the things I want to do and accomplish. Yes, living with the uncertainty is not fun but we have to make the best out of it and live our lives to the fullest!