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DiscussionEffects after stopping Camzyos
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 16 3:56pm | Replies (7)Comment receiving replies
Replies to "Did it adjust after a while? or are you still having these symptoms?"
After having a septal myectomy in 2017, Mavacamten for 6 months, and now on a clinical trial for aficamten....no, my symptoms have not gotten better sorry to say. I really don't know what is next. I go back to the clinical study on the 31st. Some people feel better, some don't. My ejection fraction went from 70 to 60, and now 53. It's really a crap shoot.