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DiscussionHow important/helpful is a respiratory therapist for someone with MAC?
MAC & Bronchiectasis | Last Active: Jul 24 8:33am | Replies (13)Comment receiving replies
Replies to "I have consulted with him.He is the “cutting edge” on MAC.Besides that he is the warmest,friendliest,..."
Yes, he is! I've been seeing Dr. Winthrop for over a year now, including going through the clofazamine trial, July through January, and continuing to follow-up. So far two negative sputum samples. In October I'll have a CT which will reveal any continuning damage or improvement in my lungs. Still no respiratory therapist, but thanks to Dr. W and all the sharing in this group, I feel like my airway clearance routine is pretty effective. I'm also feeling better about my pulmonologist who is in touch with Winthrop. I feel like he's more communicative with me, and I understand where he's coming from. His original instructions to go on the big three were standard protocol, and the best he knew (way more than most it seems), but as he said on my last visit, Dr. Winthrop has more options. I like my team!