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Long COVID and gluten sensitivity

Post-COVID Recovery & COVID-19 | Last Active: Jul 23 3:21pm | Replies (59)

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@pmgallagher003

Hello there!

I had covid in October of 2020, before the vaccine was available. About three months later, started to develop terrible diarrhea and gas. Scheduled a GI appt, went through some tests. Had an endoscopy and some blood work. They told me I had celiac disease because of elevated blood work and villous atrophy. I was devastated and a few months later a lightbulb went off. What I didn’t think about at the time was, I had done 23 and me genetic testing and when I checked it I didn’t have the HLA for celiac. Docs re tested my HLA and still no gene. So now kind of still in limbo about what is going on. I try and always eat gluten free and I have tried a few times to re introduce but the same gas and diarrhea returns. I ate gluten my whole life and this is quit the change wondered if anyone else out there had a similar story.

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Replies to "Hello there! I had covid in October of 2020, before the vaccine was available. About three..."

I have HLA-DQ8 0302, a celiac gene but no diagnosis because there was no early stage damage on the endoscopy and the GI didn't do bloodwork. My gluten intolerance morphed into celiac 14 years ago after I caught H1N1. Almost all people with celiac have HLA DQ2 or DQ8, but that doesn't mean 100%. There is shockingly little research and medical (meaning doctors) knowledge about celiac. Even if someone doesn't have celiac (although bloodwork and villous atrophy are diagnostic of such) one can still have an autoimmune reaction by being gluten intolerant, for which there is no good test. Gluten free is a lot easier than it was years ago; apps like findmeglutenfree and the NCA site help with diet and places to eat.