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@paulb2112

So sorry to hear all you’re going through. It sounds as if your body is fighting it tooth and nail and that you have a knack for beating it down despite it rearing its ugly head. How old are you? I’m 61 and feel that if this is early stage for me, it will be something that will eventually take me to my grave. But at the same time, your story inspires me so much. I feel like mine might be different since it’s in such a high risk area of my groin. And, maybe it has the propensity to attach itself to a lymph node and go system wide at some point. I think that might be my biggest fear, but I don’t know much about t-cell lymphoma. I think mine might be Micosis Fungoides? Not sure if that is bad or worse then Sevary. I’m too afraid to find out. My hope is that my genetic study comes back negative for genetic abnormalities, that would point to lymphoma. Did they do the gene test on you and how did that come out? Thanks for your time. -Paul

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Replies to "So sorry to hear all you’re going through. It sounds as if your body is fighting..."

Paul, you asked how old I am. Well, I am 79 yrs old. I am very strong willed and you are right that I am determined it will be in remission again. It can be a real pain in the butt but I do not let it be a negative for myself. I think and pray positive