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@rococo325

I had a double Mas. and BC has returned after a so called rogue cell in the arm pit area (all BC of left side) Radiation hasn't helped me. I had suspiciously confused technicians in '19 and '22 in Fl, then NC. they shuffled and fumbled around with starting machinery then changing position of it , I felt electric shocks leaving the Fl clinic. , then in NC the 2 techs were disagreeing in front of me once procedure started; stopping standing around me talking over me as I lay perfectly still hoping for a miracle . They said something about colors saying, "no I do the brown and the other said no I always just do yellow. And it was sort of some sort of shrug of the shoulders I guess I do not think I was positioned to look at them and they just walked away and started again. I'm burned to a crisp after a few month, have limited range of motion there and sunken missing tissue (which I guess is necrosis) If I was having a lumpectomy, I'd definitely say, PLEASE do very GOOD clear margins to help cut out more chances of rogue cells being left behind.

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Replies to "I had a double Mas. and BC has returned after a so called rogue cell in..."

@rococo325
I am so sorry you are going through this after everything you have already been through. What is your treatment plan going forward? Praying for you!

Did your necrosis feel like a hard lump? Is it from the radiation?

Thanks so much for sharing and sending hugs that you can heal and get PT for range of motion issues. How will they continue surveillance for you? PET, MRI - good luck! I'm in MA and am seen at Dana Farber - with lobular I didn't get great margins, 58 yrs old and almost 2 years out hoping to continue with alternating MRI's , Mammos for surveillance. I am hopeful that liquid biopsies can be used to match our blood draws to tumor markers to pick up any reoccurrences sooner that scans! xoxoxo