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NTM/MAC/MAI: We must advocate for ourselves

MAC & Bronchiectasis | Last Active: Sep 17, 2022 | Replies (145)

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@kaystrand

Questions:
1. Why are more people getting MAC and NTMs now than in the past?
2. Tuberculosis is a reported disease, NTMs are not. They are also difficult and expensive to diagnose and the increase of 8% per year might be very low. If they are growing at even 8% per year that is a number worthy of more research dollars.
3. What do NTMs effect mostly females over age 50? My doctor says there is likely a hormone connection, but uncertain of what that means.
4. Why are tall, thinner framed women more prone to NTMs?
5. What is critical mass to get research dollars going to find better treatments with fewer side effects?

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Replies to "Questions: 1. Why are more people getting MAC and NTMs now than in the past? 2...."

I think that once #5 is addressed, we'll get closer to the answers to #'s 1-4... Starting the registry of DX'd cases at NJH will get that going...the critical mass cannot be established until it's seen in raw numbers...