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Myxofibrosarcoma: What treatments did you have?

Sarcoma | Last Active: Oct 7 12:35pm | Replies (104)

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@crystald

I was diagnosed with stage 2 Myxofibrosarcoma in June 2021. My treatment consisted of 20 sessions of radiation, surgery to remove a 14 inch tumor from my right lower leg. Along with the tumor the surgeon removed most of my fibula bone, a muscle and nerves that were encapsulated in the tumor. Five months after surgery I had three months of chemotherapy. Good news is that I have had clean scans since, however, it continues to be a hard road. During chemo I had a radiation ulcer that required surgery in 2022. Also in 2022 I had four leg infections which I almost lost my leg and a blood clot in that leg. 2023 was a year of convalescing. At that time I wasn’t sure I would be able to walk without aid. However, I was very determined and was up to the challenge to prove to myself I could walk and more. This past spring my husband and I went on a cross country trip where we hiked for several miles and up mountains on several occasions. We explored a cave with a very rocky floor. Climbing over boulders. Riding our bicycles for 20-30 miles. I still experience pain from neuropathy and a rare leg inflammation the full length of my incision, plus a broken screw and loose screw in my ankle (I wonder if the loose screw is in just my ankle : ) , but I will not let this get me down. I am a young 68 and need to keep up with my 71 year old husband who also was diagnosed with cancer in 2022. His was detected early and is now clean, too. I believe the key is to have a great support system and a strong positive outlook with a bit of humor. If you feel sorry for yourself you are doomed. Just remember there is always someone worst off than you. I think of my neighbor’s 8 year old grandson who has been fighting brain cancer for half his life and unfortunately his outcome looks bleak. You wouldn’t know it to watch this young man. He lives life to the fullest with a smile on his face. We all need to learn from him.

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Replies to "I was diagnosed with stage 2 Myxofibrosarcoma in June 2021. My treatment consisted of 20 sessions..."

Very inspiring in spite of a difficult and challenging journey. Keep going strong.