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Finally relief from peripheral foot neuropathy! (my story)
Neuropathy | Last Active: Sep 20 5:57am | Replies (54)Comment receiving replies
I would like to ask about the progression of neuropathy. I know everybody is different, but there must also be similiarities or shared experiences we can talk about. I want to know what's next for me in coming months and years. My PN began about three years ago. It started in my left foot and involved brief but intense pain. Only at night. Felt like an ice pick was being jabbed into the bottom of my foot. After about a year, the jabbing pain is still there, but not as frequent. In its place, I now experience a burning pain along the bottom of my foot that shows itself throughout both night and day. I have never felt any of the numbness that some of you experience. Maybe that is coming up next. They say neuropathy can't be cured so what am I looking forward to as the years go by? Is it going to spread to my other limbs? How am I going to manage this disease as I continue to age? If anyone has any thoughts on progression and what it means, please consider sharing. Thanks!
Replies to "I would like to ask about the progression of neuropathy. I know everybody is different, but..."
Mine started in my right side of my neck down my arm. I have a pinched nerve and a bulging disc in my neck. I tried Gabapentin but it had a lot of side effects. Also, tried Lyrica but it didn’t help. I tried anxiety and depression medicine. All have given me full blown cause of neuropathy from the top of my bottom down both my legs and all the way through to my toes. I hurt so bad I can’t sleep. I have epilepsy, also. Keppra and Clonazepam started me to have involuntary leg and arm movements. My pcp, neurologist and psychiatrist said this can’t happen because it’s not in their books. But it has and I live in constant pain.
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Mind went from my feet, knees, shoulders and hands. I am sure it effects different people different ways. 2013 I had Total knee replacement. 2016 fail from a ladder form my feet thinking the pain I was having from a failed Knee replacement was the cause. I come to find out that it was the pain from the Neuropathy that caused me loosing my footing and breaking my feet.
Now I have severe pain in both shoulders my Orthopedic doctor saying it is the Neuropathy causing the pain. The pain can make your hands feel like they are on fire and Joint Very, very painful.
My case is Severe I've had it for years VA never diagnosed it I finally got diagnosed 2024 after so many years. At least I know what's going on now and and it's not in my head. The TINGLING was the worse to get use to it drove me crazy for years no could tell me what was going on. it got so bad I thought the Massager in my Recliner was on.
Hope this Helps