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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)
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@don69

I have been diagnosed with HCM. I have to start taking Camzyos. What can you tell me about this medicine? What are the Stats on this? My cardiologist has never prescribed this before. I am very nerves about this do you know of anyone who has taken this pill before

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Replies to "I have been diagnosed with HCM. I have to start taking Camzyos. What can you tell..."
Snicalfritz | @snocalfritz | Jul 21 3:30pm

From what I have read about this medication will help relax the muscles in your heart and help you to exercise and relieve symptoms such as shortness of breath. Stay away from grapefruit and its juice unless your doctor says you can take it. I wish you well on your journey to wellness.

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Debra, Volunteer Mentor | @karukgirl | Jul 21 3:38pm

Hi @don69, and a warm welcome to Mayo Clinic Connect!
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
I do not know if you have had an opportunity to poke around here on Connect or not, but I have posted a link to the Camzyos support group. This is an amazing support group and you can learn a lot from them. I would highly recommend you reading some of the posts there.
@kelliw and @jaymaysea are two Camzyos troopers! I hope you read their stories.
I think anyone would be anxious about starting a new drug, so you are totally not alone. In fact, you are in the best company here on Connect. Check out the Camzyos link I sent.
Were you just recently diagnosed with HOCM (HCM with obstruction) or have you known and are now symptomatic enough for Camzyos?

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