@missholly
Please re-read Sue's note.
Our mentors give such solid, reasoned and medically sound advice.
Trying not to be too "shocked and awed" is a real skill. But getting the right diagnosis can sometimes be a long road.
Getting a skilled specialist is key; and if that is correct, March of next year, then take action! I do think that is simply way to far away; both for your physical care and to bring calm to your soul.
Are you near (within afew hundred miles) of a Mayo Clinic? I do not live in the U.S , but you may... so avail yourself of this excellent source of care. Give a call and see what they suggest.
Let us know how you get on .
All the best to you.