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PRRT side effects and results

Neuroendocrine Tumors (NETs) | Last Active: Oct 24 7:32am | Replies (39)

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@kim1965

My wife completed 4 cycles of PRRT with not many issues. She did feel sluggish and nauseated after 2nd one. What help is your medical team given you?

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Replies to "My wife completed 4 cycles of PRRT with not many issues. She did feel sluggish and..."

My husband completed his 4th PRRT treatment 7 weeks ago. He has been very tired this time but the heat hasn’t helped. We go for scans August 4th and see oncologist August 5th. Fingers crossed.

Hoping your wife is continuing to do well. My husband has struggled a bit coming back from his 4th treatment but I think he is finally starting to feel better. Scans showed shrinkage in most of his tumors but a slight increase in just a couple. Any increase at all was a dissappointment but hoping he stays stable going forward. His sugars and very good so that’s a good indicator of stability for insulinoma. He continues with octreotide infusions every month and will have new scans in November.