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Long haul Covid tremors and muscle spasms
Post-COVID Recovery & COVID-19 | Last Active: Aug 30 7:09am | Replies (122)Comment receiving replies
I was first diagnosed October 2020 with my first bought of Covid. At the time I had not had the shot. After having Covid (bad flu like symptoms for 3-4 days), I had new symptoms after having it. Heart palpitations, muscle twitching, spasms, internal vibrations, etc… I’ve been checked out by every specialist out there. A neurologist thought maybe MS or ALS, but in 4 years I’ve not had any other symptoms for those two diseases. I’ve seen a cardiologist who swears there is nothing wrong with my heart. The sporadic heart beats and high heart rate at times come out of no where. All this to say, no, I have not found a solution or anything to help the fasciculations (twitching). It’s very scary! Some days it makes you think am I going to see tomorrow? I’m glad to know that I am not the only one with the symptoms. Big hugs to everyone out there suffering with Long Covid! ♥️
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I’m in the Uk with now over 4 years 4 months of Long Covid…don’t get to see specialists , and even ones we get referred to don’t see, if lucky a phone call, or just dismissed after various scans ( chest X-rays, ecgs, echocardiogram, breathing tests)… So being left with high BP, high HR, breathlessness, fatigue and no sense of smell, and only ‘remedy’ being 5 different BP drugs. Even a Falls Consultant with a tilt test table, a 4 hour journey to/from home, who diagnosed postural hypotension ( not POTS) along with hypertension on sitting, just juggled the BP drugs. So last 18 months looking for any DIY improvements: swim 50 mins 5x a week, and intermittent fast 16:8 then ( no statistical improvements for BP or weight but must be doing me good!). More recently looking at research on vitamins/ minerals and likely deficiencies in Long Covid sufferers…bit ambiguous whether people were short before they caught covid, or whether covid and LC has caused them. You’ll find lots on B12, vit D, ferritin/iron, also vit C, thiamin/B1, Magnesium etc etc, plus supplements like Alpha Lipoic Acid, nattokinase, Augmented NAC etc. I’m surprised I don’t clatter when I walk! But these additions have been added slowly, say only one change/ addition a month. This last week I started B1/Benfotiamine said to be of use for high HR/ postural hypotension ( and just found out also for pre existing diabetes)…little work done on it as Big Pharma can’t patent it. Have you considered low B12 for neurological symptoms ( which can be easily / cheaply tested …best as ‘active’ B12)?
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I just stumbled upon this thread. I also developed sympotms of internal vibrations which I originally blamed on Covid but now I truly believe my tremors are the result of Klonopin, which is a nasty Benzo medication a sleep doc. put me on around the same time. After being on it for a month or so I noticed tremors beginning. Body buzzing during the day as well, felt at times like I was sitting on an outdoor AC unit while it was running. I blamed Covid but then realized it might be this new med. After taking it for 7 months I stopped cold turkey, which is very dangerous. Now more than a year later my buzzing has completely stopped but I still notice inner vibrations at nighttime only. Unfortunately I read the withdrawal of this medication, especiually when not weaned at a slow pace, can linger for several months even years. I saw a neurologist who found nothing wrong with me. I also thought I was developing MS or Parkinsons at one point. Crazy stuff. My primary couldn't believe sleep doc gave me this nasty Benzo. I hope you find peace at some point but I don't think it will harm you although its frightening for sure.