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@paulb2112

Thank you kindly for your reply. To give you some background: The lung disease I had was likely immune related, and not cancerous. It was 11 years ago. It’s called interstitial lung disease, but we think it was an isolated “event” because it has seemingly resolved itself. I have had no relapses in about 9 years and my doctor considers me “resolved.” I am not even fully diagnosed yet as of Thursday morning. That’s when I received the initial biopsy report, that I’m told is “not a diagnosis.” I have a small red patch in one location on my groin right leg, where many lymph nodes are. They call it the “bathing trunk” area. I had a biopsy about 10 days ago. The pathology shows what my doctor calls a “suspicion that it might be t-cell lymphoma” and has sent me to see a cutaneous oncologist probably in the next two weeks after they also review the biopsy slides. There is still pending gene rearrangement test that would either support or negate the suspicion, however, I’m told if the gene test is negative, I’m still not 100% out of the woods. The rash is only 6-7 weeks old at most. I fought it very early, and I made sure my GP sent me to a dermatologist right away. The hardest part dealing with this is that I have been applying topical steroids, and other things like antibiotic creams and eczema ointments and it hasn’t cleared. I don’t have night sweats, fever, or itching of any kind, except recently at the biopsy location. The lesion is approximately 5-6 inches round and is not raised or flaky, and doesn’t have spores or puss, etc. its possible, I’m overreacting, and the biopsy not conclusive, but just seeing the biopsy report and seeing my white blood cell count high and this rash that won’t go away, I’m preparing myself for the worse. I realize it’s treatable but I’m reading about 5 year to 9 year life expectancy and it scares me to death. I just got married 2 years ago at 59 for the first time, I thought I was going to live my life normally, and fear this will change everything.

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Replies to "Thank you kindly for your reply. To give you some background: The lung disease I had..."

I was being treated for psoriasis for about 5 years before my lymphoma raised its head.
Only when my WBC spiralled to 125 did they send me to a hematologist who diagnosed the T Cell. Oncology identified it as Sezary Syndrome