← Return to Is Cutaneous T-Cell Lymphoma a Death Sentence?

Discussion

Is Cutaneous T-Cell Lymphoma a Death Sentence?

Blood Cancers & Disorders | Last Active: Jul 29 4:07pm | Replies (28)
Comment receiving replies
@pastororwin580

I've had it since 2015. Radiation came first, but hat has limited value. I'm told it doesn't work as well the second time in the same area. I use Clobetasol .05% to treat specific spots. My Oncologist said they might try U.V. light if it gets out of control. I am on a low carb diet (G.O.L.O.) and make sure I take vitamin D3 and Zinc to strengthen my immune system. Blessings!

Jump to this post

Replies to "I've had it since 2015. Radiation came first, but hat has limited value. I'm told it..."
paulb2112 | @paulb2112 | Jul 19 6:18pm

So sorry for your struggles with the treatment. I’m hoping you’ll find just the right treatment that works. 9 years is a good run so far! I think I’m in the very early stages, only six weeks with a rash on my inner thigh. I caught it super early. They are optimistic that it can be treated with creams and potions. I’m just scared about living my life with this new challenge. Has it impacted your life in a devastating way? Or is it more like a huge annoyance? My fear is that it will come back somewhere else and end up killing me. 😣

VIEW AND REPLY