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@equanimous

I agree. It may be time to explore residential care. It won't be easy but I would reach out for professional help to assist with the coordination of a plan. You can start by reaching out to a care coordinator in a facility that may be near to you. At the very lease, start thinking about it and gathering information. Just that act may help alleviate some of the tremendous stress you are shouldering. You deserve to live too. Sending loving thoughts to you.

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Replies to "I agree. It may be time to explore residential care. It won't be easy but I..."

I know my reply is very late but answering your question is difficult without coming across as negative.This is how the system actually works for older people who are mid to upper middle class. We both have Medicare and another insurance, through his past employer. If by professional help you mean therapy. total waste of time, most of these people have no idea how to deal with Dementia+Narssicism. The answer of "take deep breathes" and "find a safe spot in your mind", dont do squat! Then you pour out your heart and give them situations you are living with and then they tell you the are booked up for 3 weeks, so they can see you after that. So do I just freeze dry my life until then? Care Coordinator? OK gathering information is, how many $1000's can you afford a month. Care is not covered by insurance so you either drain your savings, ( which would take about 3 months) re mortgage your house, or you deal with it. Home care? Does not qualify because the system says if he can feed himself, dress himself and take care of his personal needs alone, then he does not need help. Also, he passed the medical idiot test, which is can you answer what the date is, the day, your name, and who is president, then you have "Passed with flying colors". Trust me I have spent over a year trying to find some sort of help for either one of us. Medical doctors all have the same answer "I am sorry you are going through this". Some offer anti anxiety drugs for me. So thats why me and 1000's of others in the same situation are on forums like this trying to grasp a straws!