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DiscussionDr proposes surgical myectomy--but I have no symptoms
Hypertrophic Cardiomyopathy (HCM) | Last Active: Jul 22 10:13am | Replies (6)Comment receiving replies
Replies to "My diagnosis of HCM was done at the Mayo earlier this month. They are the ones..."
Hi @susanh711
I was diagnosed with obstructive HCM about 15 years ago. Dr Michael Wahl took such a good care of my heart for 13 years that all I was taking was 100 mg Metoprolol with very mild angina issues. I was doing my part by walking 2 to 3 miles per day and having great vegetable diet with very low fat meat/chicken/ etc. Last year was the problem after I got Covid 19 for the first time my septum basal went up from 1.3 cm to 2.2 cm which is a huge block at the lower part of my heart. My Cardiologist referred me to a highly specialized surgeon for a possible open heart surgery. I saw the new cardiologist who gave me 3 options: open heart surgery, or alcohol oblation or CAMZYOS oral capsule treatment. I chose CAMZYOS (the Cardiologyst, his nurse, the mail delivery pharmacy and myself had to be certified to use that medicine which side effect can go as far as a heart attack). The first week of CAMZYOS 5 mg I felt a lot better, my angina was totally gone, my monthly echocardiogram (required to keep taking Camzyos) showed incredible improvement my pressure in my heart went down the first month from over 200 to around 30 ONLY!!! My septum diameter size in 3 months went down from 2.2 cm block to 1.4 cm!!! which is 40% improvement!. The medicine is covered by my insurance ($8,500 per month) and the laboratory that manufactures it helps me with $200 copay so I pay only $10 copay per month.
Ask your doctor if non-surgical procedure using CAMZYOS can help for it is not for everyone due to the potencial side effects (in my case very light dizziness for 2 weeks that is gone forever now). Try to take walks for that helps a lot. I wish you the best and if you have any more question about my Camzyos treatment, please let me know.