Yes. I was on Letrazole them Anastrozole for 5 years. My cancer returned last July. Mets to liver. Had an ablation. Now on Faslodex and Ribociclib.
Ricociclib has caused neutropenia. My schedule changed to 3 weeks on 2 weeks off.
I may have a local recurrence ( awaiting biopsy anxiously) after a mastectomy 2.5 years ago - no rad- but on Anastrozole! So is this a possible resistance to anastrozole? A “clib” med may be on horizon if so.
Is the Ribociclib a two year regiment or ongoing ?
Yes. I was on Letrazole them Anastrozole for 5 years. My cancer returned last July. Mets to liver. Had an ablation. Now on Faslodex and Ribociclib.
Ricociclib has caused neutropenia. My schedule changed to 3 weeks on 2 weeks off.
So sorry to hear this recurrence; it’s never really “ over” for us! So frustrating and scary. So glad you found it and seem to be dealing well with the modification in treatment.
Best to you and all of us on this unwanted journey! 🌸
@hikerlou
For everyone who has commented, it seems to have been several years or after they stopped the medication that the cancer returned.
Since it has only been about 14 months for me, maybe it is just something like scar tissue….?
Idk what to think, but it seems so soon for it to return!
@hikerlou
For everyone who has commented, it seems to have been several years or after they stopped the medication that the cancer returned.
Since it has only been about 14 months for me, maybe it is just something like scar tissue….?
Idk what to think, but it seems so soon for it to return!
I think you have a biopsy set in about ten days or so? If I've got this right, do check in and tell us what you find out. It is really impossible to know what is going on without one. I do understand your worry about recurrence, as I think many of us share it. Hoping for the best for you.
I think you have a biopsy set in about ten days or so? If I've got this right, do check in and tell us what you find out. It is really impossible to know what is going on without one. I do understand your worry about recurrence, as I think many of us share it. Hoping for the best for you.
I may have a local recurrence ( awaiting biopsy anxiously) after a mastectomy 2.5 years ago - no rad- but on Anastrozole! So is this a possible resistance to anastrozole? A “clib” med may be on horizon if so.
Is the Ribociclib a two year regiment or ongoing ?
There is local recurrence, a second primary cancer, and metastasis and I get confused on this thread about what we are discussing!
Since I had a double mastectomy I am primarily concerned with metastasis- cancer "spread," not cancer "return."
I asked my oncologist about Signatera and they only use it for those diagnosed with metastasis/stage 4. My oncologist basically discharged me at 5 years. They don't do any cancer markers. I know that risk continues to climb and I believe mine is around 10-12% at this point, maybe more.
I am not sure how we are supposed to catch metastasis. Other than imaging for something else. I agreed to an abdominal CT w/oral contrast. for a mere gas pain basically, despite my kidneys and sensitivity but oral vs IV contrast was, according to the report, "not sufficient" to see tumors. Lung CT had a nodule but that is common. Bones are painful all the time with 7 fractures, arthritis etc. I don't get it.
Yes. I was on Letrazole them Anastrozole for 5 years. My cancer returned last July. Mets to liver. Had an ablation. Now on Faslodex and Ribociclib.
Ricociclib has caused neutropenia. My schedule changed to 3 weeks on 2 weeks off.
@hikerlou
For everyone who has commented, it seems to have been several years or after they stopped the medication that the cancer returned.
Since it has only been about 14 months for me, maybe it is just something like scar tissue….?
Idk what to think, but it seems so soon for it to return!
At 12 months I was told “we’re continuing to watch an enlarge level one axillary lymph node, and a lesion in your opposite breast”. At 18 months I was cleared of both. Never know why that node had enlarged. The lesion on the left was determined to be scar.
It was very upsetting to get that news at one year. I hope you will get the “all clear” soon. It happens!
At 12 months I was told “we’re continuing to watch an enlarge level one axillary lymph node, and a lesion in your opposite breast”. At 18 months I was cleared of both. Never know why that node had enlarged. The lesion on the left was determined to be scar.
It was very upsetting to get that news at one year. I hope you will get the “all clear” soon. It happens!
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I may have a local recurrence ( awaiting biopsy anxiously) after a mastectomy 2.5 years ago - no rad- but on Anastrozole! So is this a possible resistance to anastrozole? A “clib” med may be on horizon if so.
Is the Ribociclib a two year regiment or ongoing ?
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Hug
1 ReactionSo sorry to hear this recurrence; it’s never really “ over” for us! So frustrating and scary. So glad you found it and seem to be dealing well with the modification in treatment.
Best to you and all of us on this unwanted journey! 🌸
@hikerlou
For everyone who has commented, it seems to have been several years or after they stopped the medication that the cancer returned.
Since it has only been about 14 months for me, maybe it is just something like scar tissue….?
Idk what to think, but it seems so soon for it to return!
I think you have a biopsy set in about ten days or so? If I've got this right, do check in and tell us what you find out. It is really impossible to know what is going on without one. I do understand your worry about recurrence, as I think many of us share it. Hoping for the best for you.
@mir123
Thank you!
I have an ultrasound scheduled for next week.
I will let you all know what I find out.
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2 ReactionsMy ribociclib is ongoing until it doesn’t work then will do a change to something else. The neutropenia has been a challenge for me.
There is local recurrence, a second primary cancer, and metastasis and I get confused on this thread about what we are discussing!
Since I had a double mastectomy I am primarily concerned with metastasis- cancer "spread," not cancer "return."
I asked my oncologist about Signatera and they only use it for those diagnosed with metastasis/stage 4. My oncologist basically discharged me at 5 years. They don't do any cancer markers. I know that risk continues to climb and I believe mine is around 10-12% at this point, maybe more.
I am not sure how we are supposed to catch metastasis. Other than imaging for something else. I agreed to an abdominal CT w/oral contrast. for a mere gas pain basically, despite my kidneys and sensitivity but oral vs IV contrast was, according to the report, "not sufficient" to see tumors. Lung CT had a nodule but that is common. Bones are painful all the time with 7 fractures, arthritis etc. I don't get it.
So it was within the fives years of taking the medication or when you completed it?
At 12 months I was told “we’re continuing to watch an enlarge level one axillary lymph node, and a lesion in your opposite breast”. At 18 months I was cleared of both. Never know why that node had enlarged. The lesion on the left was determined to be scar.
It was very upsetting to get that news at one year. I hope you will get the “all clear” soon. It happens!
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Like -
Helpful -
Hug
2 Reactions@triciaot
Did they see the “lesion”/scar tissue on a mammogram?