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Transplant anti-rejection medications. What's your advice?
Transplants | Last Active: 1 day ago | Replies (371)Comment receiving replies
@charlie5454 I so relate to your post. Another thing I discovered in the process of post transplant lab level draws is that the phlebotomist is sometimes unfamiliar with the test & / or is following protocol by rote instruction. They don’t always ask the date and time of the last dose of immune suppressant. Who knows what or if anything is recorded? That can make the level seem falsely high or low! I make a point of telling them the date and time and ask them to make sure to record it. Later if the level seems wonky, that is one reason that can be ruled out.
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You are so right! I live on a peninsula in. The UP with a very small health center (part of their larger system 125 miles away) and the phlebotomist(s) are quite unfamiliar with transplant/immunosuppressant folks (only one remembers me after being up here 10 years) and unless I specially tell them to mark down when my last dose of Sirolimus was before the draw, it gets sent to Mayo, Rochester without letting them know when and how much my last dose was. Very frustrating. So right, while. I used to get my hackles up when one of the Transplant Team nurses would question me as to when & how much I'm taking of one of my meds...but then I'm like "hey Mayo folks are smart but not clairvoyant, and if the date/time isn't clearly stipulated on the accompanied paperwork (which their mail-in kits clearly instructs), how would they know.
Thanks for your comments and sending best wishes for you.
(PS...just got home from Gift of Life last night where we stay while at Mayo...love that place!)