Once on Tymlos, how often are you tested for calcium, vitamin d etc?

Posted by bluebonnet242 @bluebonnet242, Jul 17 12:30pm

Does your endo or pcp monitor these tests? How often does your endo do follow up appointments? Thanks!

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Appointments once a year. Testing before a new treatment.

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bluebonnet 242, on Forteo or Tymlos the endocrinologist orders all tests and monitors them. Appointments are first at three and then at 6 months following. I'm on Forteo but know his pattern it the same with Tymlos because he tried to tempt me with Tymlos.

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Thank you both for replying. My new endo said I did not need to see her again until I was transitioning to reclast. I was only on Tymlos for a month and a half when I saw her so that is quite sometime if a do reclast in 18 mos-24 mos and didn’t know if this was the norm. She had my previous testing and did a calcium test. She’s an endo who specializes in osteoporosis. Doesn’t use bone markers even though she took note of the ones I already had.

I think I will ask my pcp for calcium test and vitamin d in a few months to make sure I’m still in good shape.

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bluebonnet242,
sorry, I just realized that I hadn't answered your question fully.
I've had five PTH intact serum tests since July23. One was before he prescribed and one before I began treatment in February. He runs these tests at close to three months and then at nine months:
CTX
P1NP
BSAP
CMP comprehensive metabolic panel
CBC
PTH intact
and Lipid panel
Vitamin D
The gentleman is thorough. Usually my labs and appointments are a little off because we both travel in different directions. When I come in he has already seen everything. His practice is osteoporosis only.
I don't know how many of these labs are necessary. He is interested in statistics doesn't compare CTX to P1NP and doesn't use them for prescribing direction.
Good thinking to get the d levels checked. PTH makes very good use of D and can leave you low. My D didn't drop until a year in. You might ask for a CMP for the renal information. See if the PCP will order a PTH intact. You have to give them something to say no to.
I'm afraid that you may be experiencing practice "norms."
Great drug. Wishing you luck.

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I read that Tymlos "eats" D and did 3,000 units/day while on it. Normally I do 1,000-2,000. My D levels stayed the same on the higher dose. Once I stopped Tymlos my D levels started to rise and I was afraid of having too high a level and went back down to my "normal" intake.

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@gently

bluebonnet242,
sorry, I just realized that I hadn't answered your question fully.
I've had five PTH intact serum tests since July23. One was before he prescribed and one before I began treatment in February. He runs these tests at close to three months and then at nine months:
CTX
P1NP
BSAP
CMP comprehensive metabolic panel
CBC
PTH intact
and Lipid panel
Vitamin D
The gentleman is thorough. Usually my labs and appointments are a little off because we both travel in different directions. When I come in he has already seen everything. His practice is osteoporosis only.
I don't know how many of these labs are necessary. He is interested in statistics doesn't compare CTX to P1NP and doesn't use them for prescribing direction.
Good thinking to get the d levels checked. PTH makes very good use of D and can leave you low. My D didn't drop until a year in. You might ask for a CMP for the renal information. See if the PCP will order a PTH intact. You have to give them something to say no to.
I'm afraid that you may be experiencing practice "norms."
Great drug. Wishing you luck.

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Wow, I can’t believe the difference in protocols. My new endo is a Mayo endo specializing in osteoporosis. I was surprised there is no follow up until I’m finished with Tymlos. I’m going to contact them through the portal just to be clear on testing. They have been good about getting back to me.

My previous doctor had done testing prior to prescribing Tymlos. My PCP is good about ordering the tests I want but doesn’t know much about osteoporosis so thanks for the lists of tests.

You sound like you have a great doctor! Do you mind sharing where he’s located?

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@windyshores

I read that Tymlos "eats" D and did 3,000 units/day while on it. Normally I do 1,000-2,000. My D levels stayed the same on the higher dose. Once I stopped Tymlos my D levels started to rise and I was afraid of having too high a level and went back down to my "normal" intake.

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I remember from previous posts of yours that you mentioned Tymlos eats D. Do you recall when your D started to go down?

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@bluebonnet242

I remember from previous posts of yours that you mentioned Tymlos eats D. Do you recall when your D started to go down?

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@bluebonnet242 my D3 level did not go down because I increased my intake.

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@bluebonnet242

Wow, I can’t believe the difference in protocols. My new endo is a Mayo endo specializing in osteoporosis. I was surprised there is no follow up until I’m finished with Tymlos. I’m going to contact them through the portal just to be clear on testing. They have been good about getting back to me.

My previous doctor had done testing prior to prescribing Tymlos. My PCP is good about ordering the tests I want but doesn’t know much about osteoporosis so thanks for the lists of tests.

You sound like you have a great doctor! Do you mind sharing where he’s located?

Jump to this post

@bluebonnet my doc does all the tests listed by @gently before any treatment. I believe he did some testing 6 months into Tymlos but I cannot remember. He does not do CTX or P1NP. I had my PCP order them and talked to McCormick a few times but timing was never helpful, missed the baseline and the mid-Tymlos.

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@bluebonnet242

Wow, I can’t believe the difference in protocols. My new endo is a Mayo endo specializing in osteoporosis. I was surprised there is no follow up until I’m finished with Tymlos. I’m going to contact them through the portal just to be clear on testing. They have been good about getting back to me.

My previous doctor had done testing prior to prescribing Tymlos. My PCP is good about ordering the tests I want but doesn’t know much about osteoporosis so thanks for the lists of tests.

You sound like you have a great doctor! Do you mind sharing where he’s located?

Jump to this post

tps://endocrineanswers.com Joseph Hawkins Md

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