Hello my name is Jamie Hughes (52)and I was just recently diagnosed with Clippers. My symptoms started about the end of June 2024. I went to an urgent care with sores in my month. They started me on lidocaine. So I thought the numbness in my face was from that medicine. But as the numbness spread to basically my whole body I got worried. On top of all this I have a 5ml mass on my lungs and have been on and off heavy prednisone since March 1st. So I called my pulmonary dr and he stop my prednisone on July 1, thought I was having side effects from them. On July 3 I fell at home and my speech started getting worse. On July 4 it got pretty bad so I went to the ER. My main symptoms were speech and cognitive skills. Did an MRI and spinal tap and was diagnosed with clippers and started 1g of prednisone. However the infection disease dr stopped that after day four because the tap showed a fungal infection also. Started meds for that and did another tap. After three days it came back negative. So started 60mg prednisone on July 13. To date my speech has straightened out. My cognitive skills are back to about 85% with the left side of my body being the worst, my arms and legs just feel heavy. I do feel lucky in that I was told it would take about 6 months to see a neurologist, however I’m going to UVA today. Nice to be a group of other unique people, as I’m sure you’ve been called also. Just trying to figure out the long term goal, as of right now I would take being able to drive myself.