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Does Camzyos reduce thickening of the heart or manage symptoms?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Jul 20 7:58am | Replies (12)Comment receiving replies
Hello,
Thank you for responding to my question. I was diagnosed last year February after an echo for a murmur and was seen by a Camzyos cardiologist but because of some circumstances with paperwork I decided to see another cardiologist for a second opinion mostly due to the black box warning. I have once again been recommended to use Camzyos. I do get short of breath at times and a little tired but have no other symptoms and am not restricted in my movements or daily activities. I have researched as much as I can to try and determine if the pill reduces the thickening but cannot find any answer. My doctor said it could but nothing definite from him or online which is why I thought to try the support group. From what I can determine, it is basically for symptoms which I don't have a lot of and the only way to reduce the thickening is through Alcohol Ablasion or open heart surgery. I will continue to research and will make a decision soon about starting the program. Thank you again for your kind response
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Hi. I started Camzyos last October after having HCOM for over 5 years. I recently became more symptomatic (65 y/o), having trouble climbing stairs without SOB at the same time my ECHO showed a significant increase in my gradient (over 100). I elected to start Camzyos and had an immediate decrease in my gradient to normal. HOWEVER, I did not feel much different. Since I had minimal side effects, I stayed on the medication. After 6 months my Cardiologist surprisingly stated he could barely hear my murmur anymore! We feel this is related to my mitral valve flap or septum decreasing in size. I am now trying to push myself to attempt more stairs and get my exercise tolerance back up to speed. Fingers crossed. I am grateful I persisted with staying on the medication and hope everyone would give it a year to assess benefits.