When do you start getting energy after radiation?

Posted by phyllisg @phyllisg, Jul 12 11:04am

My husband had TORs surgery for cancer in January and has just completed radiation. He's so tired he feels he could sleep all the time. I've read that after 2 weeks one starts getting a little more energy. Is that what you've found?

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@crisatl

Re swollowing: I'm not sure if it was due to the surgery or radiation (but probably surgery), but he will have to strengthen those various muscles in his throat. I had a swollowing therapist. (Share all his issues with your surgeon and his team. They might not ask you about all these issues, but rather wait for you to share them.) The swollow therapist will give you exercises and perhaps a device. (I had to have one that gradually stretched my mouth to open wide enough. Later I had a Tongue-o-meter that helped strengthen my tongue. Also (though you didn't mention this,) eat moist foods and supplement with liquids when eating.

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My husband just started swallowing therapy again after finishing radiation. He can't swallow at all. And yes, opening his mouth wide enough to even brush his teeth is almost impossible. He uses a waterpik for oral hygiene and either the salt water or 1.5% peroxide. I've never heard of the devices you mentioned but will definitely ask his therapist.

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@phyllisg

My husband just started swallowing therapy again after finishing radiation. He can't swallow at all. And yes, opening his mouth wide enough to even brush his teeth is almost impossible. He uses a waterpik for oral hygiene and either the salt water or 1.5% peroxide. I've never heard of the devices you mentioned but will definitely ask his therapist.

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After I finished my 30 rounds of radiation I hit my rock bottom about 2-3 weeks AFTER my last session. My energy started to return slowly at about 2-4 weeks . It took about 9 months to get back to eating about anything I want. I say this to give him a reason to not give up. My first couple of months after radiation I have a very soft diet and boost milkshakes. Then pasta , soup, eggs, cottage cheese. The 3rd month Pizza! Steak and potatoes about 6th month. My taste gradually came back through the process as well. My energy has returned to about 90% at the one year mark. However I still have good days and not so good days. Hang in there, Get moving, and Eat what you can to get stronger( KEY POINT). Have Faith for there is a light at the end of the tunnel. Good luck !

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@phyllisg

My husband just started swallowing therapy again after finishing radiation. He can't swallow at all. And yes, opening his mouth wide enough to even brush his teeth is almost impossible. He uses a waterpik for oral hygiene and either the salt water or 1.5% peroxide. I've never heard of the devices you mentioned but will definitely ask his therapist.

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I just looked and the device that expand your mouth is called a TheraBite. (There is another device that is called OraStretch.

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@phyllisg

My husband just started swallowing therapy again after finishing radiation. He can't swallow at all. And yes, opening his mouth wide enough to even brush his teeth is almost impossible. He uses a waterpik for oral hygiene and either the salt water or 1.5% peroxide. I've never heard of the devices you mentioned but will definitely ask his therapist.

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I am a year out of very similar treatments. I concur the hardest part of radiation is the 3-6 weeks post treatment. It used to take me about 30 minutes to get one Boost down. You just keep moving, fighting, and believing "this too will pass." It does. Your husband will heal.
For me i think it was 9 month before I was at 90%. This healing process for me has been a time to get on a much better eating plan. Loads of fresh veggies and fruits, not much starch or sugar, and small amounts of meat protein. I am 43 lbs lighter and no longer require blood pressure meds, cholesterol meds, or a sleep apnea machine. I am 68

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Remember that every person is different, treatments may vary in strength, cancer amount, tumor size etc will have affect.
I was a 54 year old Deputy Sheriff K-9 handler/trainer and was in pretty good physical condition prior to being diagnosed with stage IV cancer.
My oncology team informed me that I would never be the same again after treatments and that I needed to apply for SSDI because I would never return to work.
I wasn’t willing to follow that path but then my wife and I remembered how her dad and a few other family members never fully recovered from the same cancer so I did apply and was approved.
After treatments were completed I had nearly zero energy and couldn’t swallow food or liquid.
My food intake was 100% through feeding tube for a year and I wanted to sleep all the time.
I’m nearly 8 years post treatments and my energy has still not returned to even 60%.
I’m have many post treatment problems which contribute to my lack of energy. Chronic migraines 24/7 probably contribute to most of my energy problems.
I’m sorry I didn’t have better news to give you but I just wanted for you to know that some of us suffer for many years while some only suffer for weeks or months.
Wishing the best for your situation.
MOJO

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I'm so sorry that your situation turned out like it did. I'm still hoping my husband will regain enough strength to do some of the things he enjoyed . For now we take it a day at a time. I've had to give up my volunteer work at the local animal shelter which I loved. So cancer affects the whole family. I wish you peace.

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Yes. Take it all one day at a time; one step at a time. It will get better!! But it might just be a little different. But don't let fear come on you!! Keep looking up and trust the Lord! But do advocate for yourself. Let your doctors know what you are experiencing. There are many resources available for both you and your family.

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