I have the exact same diagnosis with fibromyalgia & CPS… same exact thoughts and experiences as you. Took way too many doctors and way too many years to finally get the correct diagnosis. It’s extremely challenging physically and emotionally as well. It’s astounding… I’ve been to dozens of the most ‘renowned top doctors’ in SoCal and they either don’t know anything about CPS & fibro or they just flat out don’t believe in it. I’ve gone through years of unnecessary modalities, surgeries, misdiagnosis, etc. A few years back I literally was at the end of my rope…. I’d been suffering for so many years and my body, mind… every ounce of my being were so tired and didn’t have much fight left. I was in such extreme pain 24/7 for over a decade… ended up in the hospital for almost a month. After so many years of researching and trying to find my own answers, I did believe that I had fibro & CPS along with an autoimmune disease. I found a doctor in LA that finally listened and diagnosed me correctly. All my other doctors kept telling me it was chronic pain from degenerative disc disease. I knew it was way beyond that. She agreed. Anyways, turns out that I was right and thankfully I found this doctor that knew so much about CPS & fibro and listened to me wholeheartedly, didn’t let her ego or expertise get in the way of listening to my thoughts and experiences. To this day, her and I continue to work together to formulate a plan to try and manage my pain. Ketamine has been the only thing that works thus far. Also, it is a very intricate balance of adjusting my meds and knowing when to back off a bit because of tolerance and hyperalgesia from the opioids. It’s just so hard to explain to family and friends. No one gets it. They all think it’s the same as chronic pain which of course it’s not or that it’s in my head… even been told I was just trying to get attention which couldn’t be any more infuriating. Who in their right mind would go to dozens of doctors, spend hours upon hours every week filling out forms, arguing w/insurance companies, trying to keep track of all the meds and get things approved, go thru dozens of agonizing modalities, be poked & prodded, way too many ER visits, horrible hospital stays, $1,000’s of dollars, losing my social life, missing out on family time… all that for attention??!!! The nerve. Anyway, didn’t mean to write a novel here😕 sorry for the long rant… I just am amazed to find someone else that has such a similar diagnosis & experience and I’ve just gone thru so much hardship w/this. These are scary diseases to tackle. You have no choice other than to remain strong and have hope that one day there may be more developments on how to manage CPS & fibro better. As much as I hate to know others are suffering with this type of pain, it’s nice to know that I’m not alone in this battle. Hugs to all living with this…. May we continue to be hopeful & strong💕💪🏼☮️