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Does Camzyos reduce thickening of the heart or manage symptoms?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jul 20 7:58am | Replies (12)
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@karukgirl

Welcome to Mayo Clinic Connect @haasil.
There is a lot of information here at Connect about all things HOCM (Hypertrophic Obstructive Cardiomyopathy) and HCM (hypertrophic cardiomyopathy).
Have you had a chance to look around? I posted a couple of links from Connect about Hypertrophic Cardiomyopathy and the Camzyos support group. I also posted a link to Camzyos where you can go and learn about what this drug does and doesn't do.
You mention you were advised to take Camzyos, were you not given any information about it? I would certainly ask your cardiologist. This is something that you need to learn about to be your own best advocate. HCM and Camzyos is something your physician needs to be up to date and very well informed of. It is important your doctor knows how to treat your condition. Camzyos is a miracle drug for some, and for others they cannot tolerate it at all. Do your homework and read here on Connect and whatever else you can get your hands on!
How long ago were you diagnosed?
Were you diagnosed straight away, or did it take time to finally arrive at HOCM?
How is your overall health aside from HOCM?
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
https://connect.mayoclinic.org/discussion/hcm-ers-introduce-yourself-or-just-say-hi/
https://www.camzyos.com/

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Replies to "Welcome to Mayo Clinic Connect @haasil. There is a lot of information here at Connect about..."
haasil | @haasil | Jul 17 5:58am

Hello,
Thank you for responding to my question. I was diagnosed last year February after an echo for a murmur and was seen by a Camzyos cardiologist but because of some circumstances with paperwork I decided to see another cardiologist for a second opinion mostly due to the black box warning. I have once again been recommended to use Camzyos. I do get short of breath at times and a little tired but have no other symptoms and am not restricted in my movements or daily activities. I have researched as much as I can to try and determine if the pill reduces the thickening but cannot find any answer. My doctor said it could but nothing definite from him or online which is why I thought to try the support group. From what I can determine, it is basically for symptoms which I don't have a lot of and the only way to reduce the thickening is through Alcohol Ablasion or open heart surgery. I will continue to research and will make a decision soon about starting the program. Thank you again for your kind response

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