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Stopping Myeloma at the MGUS Stage

Blood Cancers & Disorders | Last Active: Sep 14 1:28pm | Replies (27)

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@vgen

I agree. I am going in for first appointment with oncology because my rheumatologist noticed higher protein levels in blood. Actually my GP saw spike, but saw no need to be concerned even though my sister died last year from multiple myeloma. They kept telling her she had osteoporosis till her bones were breaking. Very sad, i don’t want to go down that path.
There must be something we can do before it’s worse

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Replies to "I agree. I am going in for first appointment with oncology because my rheumatologist noticed higher..."

I am sorry your sister died from myeloma. My grandmother also died of myeloma when she was 89. Of course, back then—80’s, I think—melphalan and radiation were the only txs. I finally found a physician at Creighton University who headed up a study of familial myeloma. But still most physicians today don’t give any credence to the significance of a family member dying of myeloma. Sometimes I think the field of medicine is like religion—fixed beliefs and excruciatingly slow to change.