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Myxofibrosarcoma: What treatments did you have?
Sarcoma | Last Active: Oct 7, 2024 | Replies (104)Comment receiving replies
Hi! Just wanted to reach out and say hi. I just joined this group but we are on similar timelines (I got diagnosed late april and just completed radiation and surgery to remove a myxofibrosarcoma tumor on my thigh (also spent about 2 yrs having it misdiagnosed as a cyst). Happy to connect more if you want to share treatment experiences or just vent. Hope you are letting yourself feel whatever you need to feel and taking things one day at a time!
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Hi, thanks so much for reaching out. I finished my 18th radiation treatment today and have 7 to go. Just been a shitty summer and will be until I’m thru recovery I guess. I just met with my radiation oncologist and she likes the way my treatments are “lining up”. My surgery isn’t scheduled yet and I’d like to get that on the calendar. Just want this thing out of my body! As I get close to the next step, I want more info just like before but ik I need to be patient. I know you know and yes, I’d love to hear how you’re doing. Not sure if these posts are public and happy to communicate with just you if there’s a way to. Thanks again for reaching out.