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Stopping Myeloma at the MGUS Stage
Blood Cancers & Disorders | Last Active: Sep 14 1:28pm | Replies (27)Comment receiving replies
Agree that just addressing MGUS as soon as detected and eliminating it was my thought! I am 65 and diagnosed accidentally 3 years ago. I actually have up to 4 tiny spikes which are below a measurable level. I have been stable thankfully.
I understand that the research is focused on finding effective treatments for the MGUS patients most likely to progress or cause problems. The current treatments aren’t benign so more harm could come if everyone was treated.
I’m hopeful for future research!
Replies to "Agree that just addressing MGUS as soon as detected and eliminating it was my thought! I..."
Interesting thoughts on mgus treatment, my husband was diagnosed with mgus 6 years ago at Mayo Phoenix. He has been monitored constantly, with blood work and bone marrow biopsies and now 6 years later has Myeloma at the very beginning stages and will start treatment. My understanding is that there is no treatment at this time that will stop the progression from MGUS to MM, but the constant monitoring every 3 months caught his at the beginning stage. That is far better than many who only catch it later in the game.
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Me, too (research). But here’s the thing, MGUS of 20 years can somewhat ravage a body meaning it can make life unpleasant enough. I just wish there would be trials with MGUS patients perhaps titrating myeloma drugs to smaller amounts—say three groups of MGUS patients at ¼, ⅓, and ½ regular doses for example. Or even smaller fractions. Of course, the drug companies wouldn’t want to find something that could eventually cost them $$$$.