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Does anyone have Hemocromatosis and??

Blood Cancers & Disorders | Last Active: Jul 15 11:31am | Replies (24)
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@colleenyoung

Hi @betsy01, here is more information from Mayo Clinic about the treatment of hemochromatosis.

- Hemochromatosis https://www.mayoclinic.org/diseases-conditions/hemochromatosis/diagnosis-treatment/drc-20351448

Phlebotomy (blood removal) is typically a safe and effective to manage hemochromatosis. I'm sorry to hear that your body is not handling the phlebotomies well. Can you share a bit more? Are you in the care of a hematologist too?

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Replies to "Hi @betsy01, here is more information from Mayo Clinic about the treatment of hemochromatosis. - Hemochromatosis..."
betsy01 | @betsy01 | Jul 15 11:31am

Hi Colleen. I should be with a Hematologist, but with a GI doctor. I do not, and never have, tolerated needles in general. However, I have had a vagal vagus response, did not pass out completely. I am suppose to go have them done every other month. Last one, they blew the vein, restuck and no blood came out of that vein. I am afraid I reached my limit and left. Next one scheduled for August 13th or so. My “good” veins apparently are building up scar tissue. I tried going to NE Florida Cancer ( recommended by an out of Mayo physician), we also ran out of success. So, any recommendations? Thank you, Betsy

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