Should I have the Spinal Cord Stimulator? Looking for reviews on this

Posted by denman55 @denman55, Jun 5, 2023

I have had chronic lower back pain due to lumbar spinal stenosis for over 10-years. I have had multiple therapies and procedures done - including RFA, Epidural steroid injections, a MILD procedure, acupuncture, OT/PT and Chiropractics, as well as an Interspinous spacer and nothing has helped my pain. After all of that, the physician I saw in March's only recommendation was for me to have the Spinal cord stimulator, but I am actually afraid of this and have read that there have been numerous injuries as a result of this implant, and after reviewing the booklet and watching the video I initially felt that it was just to restrictive in terms of how you could move your body. If you have had this procedure please let me know your results. Many thanks.

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Profile picture for domiha @domiha

I have read through all the posts in this thread with great interest. I am 73yo, male, and had a lumber laminectomy in Nov. 2022. My leg pain, before surgery, had gotten so bad that I could hardly walk. Surgery was successful for relieving the leg pain, and I am now able to walk again. But I was left with radiculopathy, probably stemming from some remaining compression at L4/L5/S1. I have numbness and tingling in my feet and lower legs that causes a lot of trouble with balance, to the point that I truly fear a fall. I have had steroid injections into my spine, and my pain doc has suggested I consider the SCS. But I don't have terrible pain like so many of you do. My main issue is the numbness that affects my balance. So my question is.... has anyone had the SCS help with the numbness and tingling issues? Has it helped improve your proprioception and your balance? My pain doc says it can help with that.... but I'd like to hear from people who have actually found that to be the case. If you had balance issues due to numbness, did that improve after getting the Spinal Cord Stimulator? Thank you... and best wishes to ALL! Mike

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You’ll be required to have a test run with the stimulator to see if it helps before the surgery. Do your research - my test was good, but the implant didn’t help so had it removed 3 years later. I’ve NEVER been told or read that it helps with balance! You need another opinion on that & maybe just use a walker! Praying you get the correct answers.

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Profile picture for domiha @domiha

I have read through all the posts in this thread with great interest. I am 73yo, male, and had a lumber laminectomy in Nov. 2022. My leg pain, before surgery, had gotten so bad that I could hardly walk. Surgery was successful for relieving the leg pain, and I am now able to walk again. But I was left with radiculopathy, probably stemming from some remaining compression at L4/L5/S1. I have numbness and tingling in my feet and lower legs that causes a lot of trouble with balance, to the point that I truly fear a fall. I have had steroid injections into my spine, and my pain doc has suggested I consider the SCS. But I don't have terrible pain like so many of you do. My main issue is the numbness that affects my balance. So my question is.... has anyone had the SCS help with the numbness and tingling issues? Has it helped improve your proprioception and your balance? My pain doc says it can help with that.... but I'd like to hear from people who have actually found that to be the case. If you had balance issues due to numbness, did that improve after getting the Spinal Cord Stimulator? Thank you... and best wishes to ALL! Mike

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I have had multiple epidurals and pain free for only 1 1/2 days. I have 4 lumbar fusions and I was directed to a pain specialist who used Medtronic's electrodes & controller. My first surgery was a simple 5-6 day trail. I had 60-70% relief. It is all about location of the electrodes. Watching YouTube I found 5 videos that either the patient or Dr. was telling the story. Now, some Dr's wake you with a local and electrodes are in, at this point the Medtronic's Technician would turn on a generic signal with patient feedback. This allows for adjustment. I like this idea of diagnosing the root cause of your leg pain. But you must ask questions and educate yourself to explain to the Dr. best practices. Otherwise they are guessing the location based upon a medical chart and past experience. Do it right the first time and you will be happier. There are dozens of brands, just ask. It is outpatient surgery with 2 days of discomfort, but remember they can stop, remove the electrodes before they implant the stimulator. God Bless!

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Profile picture for deankay1 @deankay1

I have had multiple epidurals and pain free for only 1 1/2 days. I have 4 lumbar fusions and I was directed to a pain specialist who used Medtronic's electrodes & controller. My first surgery was a simple 5-6 day trail. I had 60-70% relief. It is all about location of the electrodes. Watching YouTube I found 5 videos that either the patient or Dr. was telling the story. Now, some Dr's wake you with a local and electrodes are in, at this point the Medtronic's Technician would turn on a generic signal with patient feedback. This allows for adjustment. I like this idea of diagnosing the root cause of your leg pain. But you must ask questions and educate yourself to explain to the Dr. best practices. Otherwise they are guessing the location based upon a medical chart and past experience. Do it right the first time and you will be happier. There are dozens of brands, just ask. It is outpatient surgery with 2 days of discomfort, but remember they can stop, remove the electrodes before they implant the stimulator. God Bless!

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Thank you for your reply, @deankay1 . FOUR lumbar fusions?? Did it take them four times to get it right, or was it four different vertebrae each time? So sorry you had to endure that!! And afterwards, still in pain!!! The surgeon who did my laminectomy said he could go back and fuse L4/L5/S1 and that "might" solve my radiculopathy issues. But "might" is not what I wanted to hear. I'm glad you are getting some relief with the SCS. I'm trying to do my homework, and I'm not yet convinced that it would help with my balance. Best wishes to you!! Mike

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I am also being urged to get a spinal cord stimulator for chronic back pain after failed back surgery. I am hesitant.

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Profile picture for domiha @domiha

Thank you for your reply, @deankay1 . FOUR lumbar fusions?? Did it take them four times to get it right, or was it four different vertebrae each time? So sorry you had to endure that!! And afterwards, still in pain!!! The surgeon who did my laminectomy said he could go back and fuse L4/L5/S1 and that "might" solve my radiculopathy issues. But "might" is not what I wanted to hear. I'm glad you are getting some relief with the SCS. I'm trying to do my homework, and I'm not yet convinced that it would help with my balance. Best wishes to you!! Mike

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I need four disc fusion but doctors don't think it will work. I am so surprised your balance is off, too! I can't walk unassisted. Is this common?

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Profile picture for rosey2 @rosey2

I need four disc fusion but doctors don't think it will work. I am so surprised your balance is off, too! I can't walk unassisted. Is this common?

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Hi, @rosey2 Do you have numbness in your feet? When we learn to walk as toddlers, we build a connection between the way our feet perceive the floor/ground beneath us and the brain. It's called proprioception. Since my feet are numbed due to the radiculopathy, I don't feel the ground or floor quite as well as before.... and this is what creates my imbalance. I can walk unassisted, but I do find myself holding onto things at times. It seems to be worse in enclosed spaces where I have to maneuver around furniture or doorways. If I'm out walking in a straight path, it is less bothersome, though it's still there. I've found NO ONE who can tell me for sure that the SCS has helped them with balance like I deal with. So I'm hesitant. Best wishes! Mike

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Profile picture for rosey2 @rosey2

I am also being urged to get a spinal cord stimulator for chronic back pain after failed back surgery. I am hesitant.

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I am currently using an external bone growth stimulator by Orthofix, via the recommendation from my surgeon. Given my genetically bad spine, coupled with 35 years of RA, I opted to try it. I have a much higher risk of fusion failure (4 level ACDF) and will try anything to keep failure from happening! My PEMF collar is worn 4 hrs/day for at least 6 mos post surgery. They do make a brace for the back, as well. I can’t comment on it’s effectiveness, but it comes with good success stats.

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Profile picture for domiha @domiha

Hi, @rosey2 Do you have numbness in your feet? When we learn to walk as toddlers, we build a connection between the way our feet perceive the floor/ground beneath us and the brain. It's called proprioception. Since my feet are numbed due to the radiculopathy, I don't feel the ground or floor quite as well as before.... and this is what creates my imbalance. I can walk unassisted, but I do find myself holding onto things at times. It seems to be worse in enclosed spaces where I have to maneuver around furniture or doorways. If I'm out walking in a straight path, it is less bothersome, though it's still there. I've found NO ONE who can tell me for sure that the SCS has helped them with balance like I deal with. So I'm hesitant. Best wishes! Mike

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Thank you.

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Profile picture for rosey2 @rosey2

I need four disc fusion but doctors don't think it will work. I am so surprised your balance is off, too! I can't walk unassisted. Is this common?

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I am learning that it does happen. My best wishes to you.

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