I had a hemorrhagic stroke in November of 2023. I am exceptionally fortunate to have a neurologist in the family. I had 3 Tia’s prior to this stroke. My nephew suggested CAA to me. He also suggested I hook up with a stroke neurologist but to not mention what my nephew had said. The stroke neurologist said exactly what my nephew said. From what I understand there are some clinical studies but apparently they have not had good outcomes yet, according to my stroke neurologist.
My neurologist thinks I potentially have 1-2 decades left in me. I am 65 now. I do vestibular PT on my own every day and walk 3 miles a day using my walker. It was such an out of left field diagnosis that I was terrified in the beginning. Now I try not to think about it and do what I can to feel somewhat human.
Good luck!
Jim