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Meningioma: Do you have a neurologist that you're very happy with?

Posted by cyndymc @cyndymc, Jul 10 6:16am

Hello does anyone have a neurologist that you are very happy with. I think mine has given up and wants to send me to palliative care. I have a meningioma that is pressing on the trigeminal nerve.

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dlc1953 | @dlc1953 | Jul 11 8:58am

Yes. I had Gamma Knife at University of Penna. this past March. I was fortunate enough to live in the area. I would seek out a good teaching hospital. This is something that I would never let a local hospital to take care of. I have my 6 month check up in September. 🤞🏻. It was amazing, I went in the morning and I was home by the afternoon! Good luck.

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mkoch | @mkoch | Jul 11 1:09pm
In reply to @naturegirl5 "@boomarang @cyndymc indicated that location is not an issue. She will travel to another location in..." + (show)
@naturegirl5

@boomarang @cyndymc indicated that location is not an issue. She will travel to another location in the U.S.

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NYU Langone Hospital on the East Coast-rated #1 hospital for neurology and neurosurgury by U.S. News and World Reports

UCSF on the West Coast rated as #2
I had my craniotomy there 8 months ago and was impressed

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boomarang | @boomarang | Jul 14 2:17pm

cyndymc I have been treated since 2013 by Scripps Clinic San Diego, Ca Doctor Joshua Alexander, DO, MPH Division of Neurology. Full address: Scripps Clinic John R Anderson V Medical Pavillion
9898 Genesee Avenue
La Jolla, California 92037 Tel 1 - 858 - 824 - 5400 Fax 858 964 3126 Dr. J Alexander saved my life and made it worth living. Everything is under control now with ZONISAMIDE CAP 300MG. at bedtime. generic for ZONEGRAN. It was a long road of trial & error. I have handled this medication very well for a number of years with no known side effects to me. Best of luck to you.

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1 reply
cyndymc | @cyndymc | Jul 14 10:24pm
In reply to @boomarang "cyndymc I have been treated since 2013 by Scripps Clinic San Diego, Ca Doctor Joshua Alexander,..." + (show)
@boomarang

cyndymc I have been treated since 2013 by Scripps Clinic San Diego, Ca Doctor Joshua Alexander, DO, MPH Division of Neurology. Full address: Scripps Clinic John R Anderson V Medical Pavillion
9898 Genesee Avenue
La Jolla, California 92037 Tel 1 - 858 - 824 - 5400 Fax 858 964 3126 Dr. J Alexander saved my life and made it worth living. Everything is under control now with ZONISAMIDE CAP 300MG. at bedtime. generic for ZONEGRAN. It was a long road of trial & error. I have handled this medication very well for a number of years with no known side effects to me. Best of luck to you.

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Thank you for the information. Where is your M and what kind of symptoms were you having?
Cyndy

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2 replies
boomarang | @boomarang | Jul 15 5:28pm
In reply to @cyndymc "Thank you for the information. Where is your M and what kind of symptoms were you..." + (show)
@cyndymc

Thank you for the information. Where is your M and what kind of symptoms were you having?
Cyndy

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TO cyndyme, I Have Encephalitis of the Frontal Lobe. Causing Seizures periodically. Sorry, I did not realize your condition. I will still stand by my recommendation of my Neurologist. Prior to Scripps he was at UCSD Hospital. He & I believe one of the best. You may want to consider UCSD for your condition. That was my first introduction to him. I do not think I would have survived without his medical knowledge & expertise & never gave up. It is unknown to me why he left UCSD & went to Scripps. It worked out well for me because I had insurance to cover Scripps at that time. Unfortunately, I no longer have that insurance. His services are no longer available to me. I am very sad & concerned I am no longer under his care. He was my rock for 11 years. My life was in his hands at all times. I wish you the very best. Prayers your way. Regards , Boomarang

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boomarang | @boomarang | Jul 22 2:15am
In reply to @cyndymc "Thank you for the information. Where is your M and what kind of symptoms were you..." + (show)
@cyndymc

Thank you for the information. Where is your M and what kind of symptoms were you having?
Cyndy

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cyndymc My last post to you of July 14 is all the information I have. Frontal Lobe seizures caused by Encephalitis. I gave you names, places and numbers Good luck best regards. boomarang.

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1 reply
thomhorowitz | @thomhorowitz | Dec 13 11:08pm
In reply to @boomarang "cyndymc My last post to you of July 14 is all the information I have. Frontal..." + (show)
@boomarang

cyndymc My last post to you of July 14 is all the information I have. Frontal Lobe seizures caused by Encephalitis. I gave you names, places and numbers Good luck best regards. boomarang.

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There are a few great neuro oncologist. Dr Rudnick at cedars and Dr lai at ucla come to mind

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