What pain reliever can I take with ITP and NASH.

Posted by miffed @miffed, Jul 14 5:55pm

I have ITP.. and NASH.. I have chronic pain from osteoporosis and osteoarthritis.. many surgeries and implants… just not a healthy person…used Percocet…but it has Tylenol in it… because of low platelets I can not take that med anymore. My platelet count was down to 5 , Canadian . Hospitalized, chemo, inhalation 60 mg of prednisone.. now weaning off.. anyone recommend a good and effective pain med? I am 75 yr old female. On morphine now… as needed… the most I take are 2 per day… rarely… just when I have to get something done.

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I am not that familiar with ITP or NASH. (And I don’t like acronyms.) I have osteoporosis, but have never experienced pain from it. I’m so sorry that you are experiencing pain from it and from the osteoarthritis. In the past I’ve been told that the only pain med I should use is acetaminophen so I am curious why you seem to have concerns about Tylenol? I did something bad to my neck last autumn and was told to use arthritis strength Tylenol. I also had a prescription muscle relaxant. That would be an issue for your provider. Another idea for you is to consider is if any pain meds were used for you during your hospitalization. Could you check with that provider and with those medical records?

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@cehunt57

I am not that familiar with ITP or NASH. (And I don’t like acronyms.) I have osteoporosis, but have never experienced pain from it. I’m so sorry that you are experiencing pain from it and from the osteoarthritis. In the past I’ve been told that the only pain med I should use is acetaminophen so I am curious why you seem to have concerns about Tylenol? I did something bad to my neck last autumn and was told to use arthritis strength Tylenol. I also had a prescription muscle relaxant. That would be an issue for your provider. Another idea for you is to consider is if any pain meds were used for you during your hospitalization. Could you check with that provider and with those medical records?

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Nash is non alcoholic cyroris of the liver. Using Tylenol and anti inflammatories for 45 yrs. I have used opioids for every surgery I have ever had, which are many . Back surgery,knee and hip replacements, etc. I am now on morphine and I do not want to be on it.. this is why I was asking if anyone has used anything else. Prednisone works great for pain but side effects are horrendous. ITP is low platelets.. and that caused major joint pains.. prednisone was great .. now weaning off and pain is coming back. This is why I was asking, if there is a miracle oitvin the universe

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@miffed

Nash is non alcoholic cyroris of the liver. Using Tylenol and anti inflammatories for 45 yrs. I have used opioids for every surgery I have ever had, which are many . Back surgery,knee and hip replacements, etc. I am now on morphine and I do not want to be on it.. this is why I was asking if anyone has used anything else. Prednisone works great for pain but side effects are horrendous. ITP is low platelets.. and that caused major joint pains.. prednisone was great .. now weaning off and pain is coming back. This is why I was asking, if there is a miracle oitvin the universe

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@miffed I forgot to welcome you to Mayo Clinic Connect; so welcome! Thank you so much for the information and explanation about ITP and NASH.
I have had some terrible experiences with morphine and steroids in the past, so I would only use opioids &/or steroids as a last resort. I don’t like the addictive properties of opioids and I agree with you about the “horrendous side effects” of steroids. I haven’t had the surgeries like you have had. I’ve had several abdominal surgeries. For those while in the hospital I used Dilaudid. Once home there was very minimal dose and limited duration of an opioid such as Percocet. I’m running out of suitable ideas from my own experience. I’m not one to give up and I like a challenge so here’s one more idea for you. Is there a reputable pain management clinic near you that you could access? Other than that perhaps other members will join this discussion with suggestions to consider?

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@cehunt57

@miffed I forgot to welcome you to Mayo Clinic Connect; so welcome! Thank you so much for the information and explanation about ITP and NASH.
I have had some terrible experiences with morphine and steroids in the past, so I would only use opioids &/or steroids as a last resort. I don’t like the addictive properties of opioids and I agree with you about the “horrendous side effects” of steroids. I haven’t had the surgeries like you have had. I’ve had several abdominal surgeries. For those while in the hospital I used Dilaudid. Once home there was very minimal dose and limited duration of an opioid such as Percocet. I’m running out of suitable ideas from my own experience. I’m not one to give up and I like a challenge so here’s one more idea for you. Is there a reputable pain management clinic near you that you could access? Other than that perhaps other members will join this discussion with suggestions to consider?

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Yes there are pain clinics… I have used one.. a five hour drive back and forth… lidocaine shots in back and neck…Percocet. Then Spine clinic.. steroid injections in my facets in back… would only do four of them because I have osteoporosis… and same Percocet, I took only as needed. Then pain clinic in hospital another 5 hour drive.. for radio ablation of my nerves… doc said too painful and does not last as long as facet injections.. he suggested Botox shots in my back and neck… then I got ITP in April and everything went downhill fast…so I have not tried the Botox as I am still dealing with ITP and the prednisone… I am down to 40 mg now.. so probably will take awhile to get to zero prednisone… this is what is going on in my painful life…😢

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@miffed

Yes there are pain clinics… I have used one.. a five hour drive back and forth… lidocaine shots in back and neck…Percocet. Then Spine clinic.. steroid injections in my facets in back… would only do four of them because I have osteoporosis… and same Percocet, I took only as needed. Then pain clinic in hospital another 5 hour drive.. for radio ablation of my nerves… doc said too painful and does not last as long as facet injections.. he suggested Botox shots in my back and neck… then I got ITP in April and everything went downhill fast…so I have not tried the Botox as I am still dealing with ITP and the prednisone… I am down to 40 mg now.. so probably will take awhile to get to zero prednisone… this is what is going on in my painful life…😢

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I can’t use it anymore bc I have breathing issues with it, but I initially had a lot of luck with lidocaine (patches & ointment). The CBD creams and tinctures seem to have great reviews for pain but I’ve not tried it. Of course it’s all got to come through your doctor. Alternative practices that have helped me are biofeedback, mindfulness meditation, acupuncture, & Jin Shin Jyutsu. Jon kabaat Zinn has some great pain management mindfullness books and started a pain clinic I think, at Mass General years ago that still persists. I like the audiobooks. It’s all about really checking in with myself about what kind of pain I’m having, and thinking in terms of layers for me. Starting super conservative with rest, baths, massage, sensory stimulation, stretching, ice, and heat, graduating to to topical biofreeze, used to try lidocain next, then Tylenol or a nsaids if for a short time, & ending very occasionally with a minute amount of hydrocodone averaging about once a month if I can’t bring the pain down with all the other methods. The problem with the pills is that they lose effectiveness so for me, it’s a balance between staying ahead of the pain cycle but not acclimating to the opiates. That means some days just have to be higher pain days where I focus on keeping my mind calm & breathing through more conservative interventions. Good luck. I’m so sorry you’re dealing with this.

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