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Mucous Membrane Pemphigoid

Autoimmune Diseases | Last Active: Jul 20 3:27pm | Replies (28)

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@audreyh

About a year ago I developed what looks like 2 clear band in the outer aspect of my left eye. They go from my upper lid to the conjunctiva. So far, they have not interfered much with my vision. Now I have a band in the upper lid, inner aspect of my right eye. If that comes out of remission and starts to grow that could interfere with my vision. The bands adhere to the eyeball. I also have tooth involvement. My gums have been very inflamed. I have a couple of teeth that feel odd if I bite down. I will start Dapsone tomorrow. I am hoping that it will help my gums. I also have MMP in my left nostril. It started with a casual nosebleed now and then. Then I started passing pieces of tissue from my left nasal passage. I am now on vancomycin gel, to each nostril morning and night. That has helpful a lot.

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Replies to "About a year ago I developed what looks like 2 clear band in the outer aspect..."

Hi are you starting the steroid rinse?…If so, it seems to be helping..the doc said some people stay on the rinse for life! ( I asked him how long we have to stay on it?

Do you or anyone know if mmp symptoms can be
Having to pull your teeth out? I never had to do anything that dramatic…& it’s hard to find answers.