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@pmm

@tiffanynblack
Greetings and welcome to Mayo Clinic Connect. I’m so sorry you’re frustrated. It is frustrating when you can’t get what you feel that you need to address your health concerns. I can attach a link for making an appointment at the Mayo Clinic.
http://mayocl.in/1mtmR63
Mayo Clinic has facilities in Phoenix and Rochester, Minnesota, as well as in Florida.
As with all new patient referrals to any physician or clinic, I suspect that they would want to look over your records or do an exam before they would order any blood test. I see that you’ve already been referred, do you have an appointment scheduled?
Rochester Minnesota is not quite as far as Michigan for you. I had such a good experience with the Rochester clinic with my husband and even though we were appraised of his condition and diagnosis ahead of time, we learned a lot from our visit there. I hope that you would have a similar experience. Can you keep in touch and let me know what happens?

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Replies to "@tiffanynblack Greetings and welcome to Mayo Clinic Connect. I’m so sorry you’re frustrated. It is frustrating..."

Yes I will! I have 3 positions with the IRS that are pending. One of which, the start date should be within 2 weeks. I will have to wait 6 weeks to schedule. I am on Medicaid now, so it is only for Missouri. I hope I live that long. lol I found out this one mutation is more juvenile, so all the doctors here are pediatricians. My luck! I've been sickly my entire life, but 15 years ago I received 2 blood patches and ever since then I have been slowly dying! I am still praying though!