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← Return to Wait time pre-transplant?
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Ty. Meld was 31 and dropped to 23. I was removed from unos in no uncertain terms by mayo at literally last minute. Was told they do not operate for liver transplant with the newly discovered issues. Am seeking a more confident / experienced team for this. University of Miami was advised as familiar with my type case and has experience. Going to Miami tomorrow for Tuesday evaluations and registration as patient.
Replies to "Ty. Meld was 31 and dropped to 23. I was removed from unos in no uncertain..."
@jmp1234, I hope that tomorrow will be a day of good news for you.
I don't remember if I shared this with you, but I also had to be inactivated from the UNOS transplant wait list by my local transplant center due to lab indication of cancer. To our great disappointment, they were not successful in obtaining tissue for biopsy. And so my local transplant center arranged for me to go to Mayo MN for testing. However, I wasn't able to get to the appointment for testing because my kidneys failed! I was on emergency dialysis in ICU before I was flown to Mayo. My story ended on a happy note: no cancer, re-evaluation, return to UNOS wait list-liver and kidney, and a successful liver/kidney transplant.
I understand how you must be feeling and how difficult this is for you.
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My husband was on the transplant list in Dallas. We relocated to Florida & as of now, he has an appointment for an evaluation at Mayo in Jacksonville. His MELD began at 37 but has since dropped to 16.
Wishing & praying the best of luck to you & your family.