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Wait time pre-transplant?

Transplants | Last Active: Aug 13 7:49pm | Replies (43)

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@rosemarya

My transplant was 15 years ago at Mayo Rochester, I remember all (or most) of the questions and concerns that I had when I was a pre- transplant patient 15 years ago - because each and every new patient has the same questions and concerns. I never get tired of meeting and sharing information that I feel might be helpful.
Liver allocation is a complex process, and MELD score is just one of the variables doctors use to determine who receives the next available liver. Here is an article that was posted on the Mayo Connect Transplant Newsfeed Blog
- Liver Transplantation: Understanding the MELD Score
https://connect.mayoclinic.org/blog/transplant/newsfeed-post/liver-transplantation-understanding-the-meld-score/
I have been busy with a broken wrist recovery and occupational therapy. I'm trying to get caught up with all of you. My transplanted liver and kidney are happy, and that makes me and my doctors happy, too. How about you?
@mkhogan, You have a great memory! As I read your summary of the pre-transplant time, I could easily visualize each step in the process from my pre-transplant experience 15 years ago. When patients like you share, everyone benefits.

@yeknich, Welcome to Connect! How long ago was your liver transplant? How are you doing?

@lonnecka, Have you been to Mayo for your evaluation?

@glover, Dave, You are already 6 months out from liver transplant! How are you getting along with adjusting to your new normal? Do you have any questions that I can help you with?

@jamesduaiswamy, It's been a while since I've seen any update. How are you doing these days?

Hi, @parrot53. What's happening in your liver world?

Pull up a chair. Lets talk!

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Replies to "My transplant was 15 years ago at Mayo Rochester, I remember all (or most) of the..."

Thanks for reaching out. It's officially 6 months next week. Unbelievable! I become more grateful daily.

I'm working on the new normal thing. I'm trying to figure out what's going to be "new" and what can be improved. A little more patience on my behalf will work wonders. 😄

Rosemary,
Hoping your recovery and PT are going well and that wrist is beginning to feel normal again.
Thank you so much for catching up. I have been so fortunate with the care I receive at Mayo Jacksonville. My tumor was ablated in 22 and I have had good liver function and no tumor recurrence for two years. As a result I have been taken off the transplant list and will continue to be monitored four times a year for the next year and then we will reevaluate, I am aware that there is a possibility of new HCC due to the cirrhosis but I am feeling very grateful for this opportunity to be well.
Everyone here on Connect has been so supportive and helpful. I am so thankful to have you all.
Be well and happy.
Susan