Connect
← Return to Amiodarone for HCM
Discussion
Comment receiving replies
Yes, I have Hcm, a-fib and SVT (super ventricular tachycardia). Sorry I didn't mention, as I was more concerned with my cardiologist's feelings on side effects from amiodrone. I've been to three ep's in the last five years - KU Medical's Heart Center, St. Louis Univerty in St. Louis, and the Tulsa Heart Institute. They all said the same thing - as long as medications are working (changed five times because of a-fib, is that called working?) they'd rather not do the ablation. My doctor (not an EP, feels it would take two or three of them because of my complexed heart; but also thinks it's time, after all other meds failed. Hope this gives you a better 'picture'.
Replies to "Yes, I have Hcm, a-fib and SVT (super ventricular tachycardia). Sorry I didn't mention, as I..."
I had an oblation in AZ for SVT and it put me into heart block, which means complete dependence on a pacemaker. Back in MN my EP was very angry I sensed because he would not have done it......would have liked me to remain on meds, however, the med that would have worked without side effects was not available in the States, but Sweden, for example, gave it out. I deeply regret the oblation and feel that it contributed to a later heart attack. <br><br>
Connect
Have you contacted the Hypertrophic Cardiomyopathy Association? They have a list of all the specialty centers in the US that have specialized knowledge of HCM. Mayo is on that list. http://www.4hcm.org It is also a wealth of information and you can talk to them about this as well. They can provide a great deal of guidance.