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test results: Anyone had scedosporium apiospermum?

Posted by Tina Sims @tinaesims, Jul 12 6:25am

I just saw my test results in my chart. It says I have scedosporiam aspospermum. Has anybody dealt with this?

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Mentor
Sue, Volunteer Mentor | @sueinmn | Jul 12 6:48pm

@tinasims Oh my Tina - In this group we seem to keep seeing new "bugs" visiting our already unhappy lungs nearly every week.
This was a new one for me, so of course I went searching. What I found is that it is a fungal infection being seen more in the past few years - is it because out testing is better, or more people are affected? Here is a recent and helpful article:
https://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-024-09140-3
I do not know whether it is always treated (with an anti-fungal, or only treated if you have currents symptoms of infection, or if the doctor will want another specimen to be sure it wasn't just a fluke - contamination of the sample from you saliva or the atmosphere.

Has the doctor contacted you yet about the result? Do you have an infectious disease doc on your care team? If not, this might be time to add one.

Would you let us know what the doctor has to say?

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1 reply
Tina Sims | @tinaesims | Jul 12 9:31pm
In reply to @sueinmn "@tinasims Oh my Tina - In this group we seem to keep seeing new "bugs" visiting..." + (show)
@sueinmn

@tinasims Oh my Tina - In this group we seem to keep seeing new "bugs" visiting our already unhappy lungs nearly every week.
This was a new one for me, so of course I went searching. What I found is that it is a fungal infection being seen more in the past few years - is it because out testing is better, or more people are affected? Here is a recent and helpful article:
https://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-024-09140-3
I do not know whether it is always treated (with an anti-fungal, or only treated if you have currents symptoms of infection, or if the doctor will want another specimen to be sure it wasn't just a fluke - contamination of the sample from you saliva or the atmosphere.

Has the doctor contacted you yet about the result? Do you have an infectious disease doc on your care team? If not, this might be time to add one.

Would you let us know what the doctor has to say?

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I actually had my pulmonologist visit today. He didn't seem to upset by it. I brought it up twice. He told me to wait and see what my next sample produces. He was more concerned about the plugs in my scan from Monday's CT. The spudem test came from my CF doctor. I saw him 2 weeks ago and have not heard from him yet. So many doctors!!!!!!!

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tracestew | @tracestew | Jul 13 8:14am

I also carry that. It was first seen 5 years ago, and through two treatments for MAC , it’s always been a watch and see. I was told by my pulmonologist that we wouldn’t treat unless we needed to. (Ie if I become immune compromised). I know it’s scary, but wait and see what they tell you. And keep nebulizing!!

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bkerry | @bkerry | Jul 14 8:19am

It came up in a bronchoscopy for me as well as MAC Intracellulare.
My specialist referred to it as a ‘bystander’. So I’m on watch and wait with that as well as MAC. So far I’m in pretty good health. I do airway clearance with an Aerobica once a day and exercise about 5 times a week. Also try to eat low sugar and low carb. My next CT is in November 🤞. I’m in Oz.

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