@diamonddi - Hi! I have not been told NOT to do anything - I even asked if, after healing from this year's 2 excision/ablation procedures, I could take a bath again; and that was OK'd right away.

Recently also I'd read somewhere where those with LS were saying that only cotton pantyliners should be used. I just asked my gyne oncol about this, and she was not aware of this, or that these existed. I just saw some in the grocery store, but didn't invest yet. So I don't know about this caution, if it's needed or not.

Otherwise, I have not heard or read in any of my research that diet or exercise or any other activity should be avoided. What I have experienced, and do believe, as is stated often, is that stress can exacerbate the LS condition.

So far, I have not had any success in removing stress (Ha!) - and, if anything, it only seems to get more intense (the sources of stress) as I get older. However, that is probably a relative perception.

Of course, just having seen my gyne oncol for a 3-month follow-up, only to find there are 2 new lesions - is certainly likely to contribute to some increased LS discomfort at times!!

Well, I just keep up with the Clobetasol, and now the Imiquimod (though applying it is very difficult to do accurately, so I sure hope I'm doing it adequately!!). I'd sent a note to this Dr. through the hospital portal, and hope to hear something more specific about how to apply it early next week.

Best wishes. Maybe ask your gynecologist, if you feel they are knowledgeable about LS. Otherwise, I would strongly recommend seeing a gyne oncologist, if you haven't already.