The beginning process of diagnosing endometrial cancer

Posted by tishie58 @tishie58, Jun 27 7:21pm

Hi, I have had a positive UTI 5 times in 6 months. Along with increasing discomfort in my lower pelvis and lower back. It feels like my insides want to fall out. I had a CT scan and it said, suspicious for endometrial neoplasm. I am waiting for upcoming urgent GYN consult.
I'm so scared. Age 66. Anyone experience this and where are you in the process now. Thank you so much for responding.

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@terry9297

Hi Tishie58;
I just got an endometrial biopsy on July 2 myself. I'm 66. I had no symptoms, just an abnormal pap and sent for colposcopy and biopsy. The test came back positive for endometrial cancer. I couldn't stand the suspense and looked on the hospital patient portal for answers so I knew before the doctor called on the 8th, which was probably not the best thing to do. I've been researching like crazy. I can barely think of anything else.

I'm now waiting for the 18th to know what is the next step...it is an appointment with a gyne oncologist. Hopefully, just taking out the uterus will fix things, but I'm worried. Sharing the journey with you Tishie. Hopefully your biopsy will be negative. The procedure isn't too bad. I had some cramping afterwards, but nothing as bad as period cramps.
Terry9297

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Ohhh wow Terry! I know and am sorry for what you're going through. Did you have a feeling it was positive? The waiting is the worst. Thank you so much for responding, reach out anytime, especially during the wait times. I'll do the same.

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@tishie58

Thank you for understanding Helen. Yes everything is as you say. I will tell the doctor or nurse, maybe even write a quick note with a few main points of the situation so I don't have to talk of it tomorrow. I'm soon going to get up and get stuff done around my apartment. My appointment is at 12:15.

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Trish, I was diagnosed with Lynch syndrome before my biopsy, so I was filled with fear when finding out I had endometrial cancer.
The gynecologist who performed the procedure knew me from my yearly checkups. She was kind and showed compassion towards me.
I was in tears because of the uncertainty. My mom has been battling the same cancer for the past six years.
The doctor’s assistant held my hand during the biopsy. That was comforting.
I'll pray that you encounter angels today and that the results return negative. 🙏💓

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@tishie58

Hi Helen,
Hope all is well with you.
I go for the biopsy tomorrow.
I get very panicked at times.
I realize once the path report comes back I can never not hear what I think will be bad news ever again. I also feel and get traumatized by procedures done to certain parts of my body. Now it's the night before and I know what to do to get my mind off it. Only now I'm sitting here frozen in fear. Thank you for letting me share this, I appreciate you. Thank God for the women on this forum. Trish

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@tishie58 I was concentrating on you and the procedure today at 12:15 EST. I didn’t think to ask your time zone so I hope that my healing energy that I sent you was received.

Did your doctor share any information with you today? How are you feeling this evening?

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I tried to respond, didn't go through I will try later.

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I have had a uti every month for 4 months, it is wearing me down but the fact I hate keep taking antibiotics. I had uterus cancer in 2009 and recurrence in my vaginal cuff in 2016. I also get nausea and lower back pain but I keep up on my tests CT, MRI for breast since I have had breast cancer also. Pet scan and my blood tests I also see my gynecologist oncologist annually and my regular gynecologist annually. They are aware of my trust issues since they missed my cancer before. Just be proactive that’s all you can do and try and get through a day when your thoughts are not about cancer, it’s hard. Some of my friends think I am paranoid and a hypochondriac I don’t care.

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@jeanadair123

I have had a uti every month for 4 months, it is wearing me down but the fact I hate keep taking antibiotics. I had uterus cancer in 2009 and recurrence in my vaginal cuff in 2016. I also get nausea and lower back pain but I keep up on my tests CT, MRI for breast since I have had breast cancer also. Pet scan and my blood tests I also see my gynecologist oncologist annually and my regular gynecologist annually. They are aware of my trust issues since they missed my cancer before. Just be proactive that’s all you can do and try and get through a day when your thoughts are not about cancer, it’s hard. Some of my friends think I am paranoid and a hypochondriac I don’t care.

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@jeanadair123 I keep up too on my cancer surveillance appointments. All of are different in how we process and view our cancer journeys. Once I was diagnosed with cancer that knowledge changed my view of the world, my life, and my emotional outlook. With your journey you are doing everything you can to take care of yourself and I understand why your thoughts return to cancer on some days. So do mine.

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@tishie58

I tried to respond, didn't go through I will try later.

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@tishie58 I get so frustrated when I type a note that doesn't get through. I hope you will try again and let me know how you are feeling today?

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Good Morning Helen,
I hope you are doing well today.
I am now waiting for the biopsy from Thursday, the doctor was very good to me and will be my GYN moving forward. She needed to go in 2 times. She did mention surgery will be needed but the path report needs to come back first. I didn't even get home and my primary care doctor called and told me something showed up in both my breast's on the mammogram from Wednesday. More views and ultrasound needed , possible biopsy. Overwhelming for sure. Went back to work on Friday and just lost it. Thank God I have my own little office. What a freaking shitshow I am!! Thanks for listening to me.

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@jeanadair123

I have had a uti every month for 4 months, it is wearing me down but the fact I hate keep taking antibiotics. I had uterus cancer in 2009 and recurrence in my vaginal cuff in 2016. I also get nausea and lower back pain but I keep up on my tests CT, MRI for breast since I have had breast cancer also. Pet scan and my blood tests I also see my gynecologist oncologist annually and my regular gynecologist annually. They are aware of my trust issues since they missed my cancer before. Just be proactive that’s all you can do and try and get through a day when your thoughts are not about cancer, it’s hard. Some of my friends think I am paranoid and a hypochondriac I don’t care.

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I'm so sorry Jean for all you've been through and are going through. I had my urology consult right after the endometrial biopsy on Thursday. He put me on an antibiotic prophylactically for the next year! Methenamine
It's called. It's specific to uti prevention. Not a broad spectrum antibiotic which is harder on the body. I also have scripts to get urine tested when I feel symptoms. Are your uti's caused by the same organism? I hope all the best for you. Trish

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I just started having bleeding yesterday, so I'm behind you. My gyno is sending me for an ultrasound on Thursday and I'll have a biopsy in her office on August 2. I'm 56 and started HRT within the past year. I feel crampy too. I'll be praying for all of you who have posted. Originally from NJ, we are dual citizens now, living in Canada. Also a marathoner runner and still weigh what I did when I got married at 23. It seems that little is known about uterine cancer - we need to fix that!

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