ANA 1280 now ANA 2560

I get auras without headache as well. I do not take any medications because I am generally sensitive to them, and my migraines aren't that frequent. I also have "vestibular" migraines that cause veritgo/dizziness. That could be something to ask about-?

Tilt table test determines if you have POTS, and whether your blood pressure goes down followed by faster heart beat when quickly going upright. Do you pass out when you get up from sitting or lying down?

Is your blood pressure low? You can buy a cuff. I have low blood pressure and make sure to hydrate a lot and eat salty things. I have a cuff at home.

Have you been tested for Lyme? A little out there but an idea from my experience!

My kid was sick like this in their teens and are thriving now. Just to give you hope. You kind of have to take one symptom at a time, one step at a time. A functional medicine or integrative medicine could help too though they might cost.

thank you so much!! Yes I have a blood pressure cuff. My blood pressure is typically always normal. Now if I feel lightheaded and I take it it is low. Typically I get lightheaded with movement so if that's standing from lying down or sitting the opposite way if I'm standing and then lay down. I was supposed to have my Tilt table test but they had to postpone it because I ended up getting a pulmonary embolism in both of my lungs. I go back to that cardiologist next month so I am going to ask about getting that done now that I am almost a year out from it.

Sounds like you might have PoTS. As I remember they might five low dose hydrocortisone but I also know two people who have gotten better. Have you looked up dysautonomia? There are clinics for that. Hope you feel better! (Those lung emoblisms sound serious. Why did they hapen? Good grief!)

No. I do not

Sorry for typos! POTS and "they might try"....

Ehlers-Danlos Syndrome is something that i am going to ask my dr. here in Australia from another chat on Mayo Clinic. I was 43 when Shingles struck badly... sorry i would have copied and pasted my last message but it wouldn't let me. Now i am 53 with ANA Positive Lupus and HLA - B27 Gene ..... and after 3 years of being on Methotrexate and Mycophenalate they wanted to up my medication to which i told them where to shove it as i had no quality of life. All i can say is what my doctor has been telling me for 10 years of every symptom..... and sheer exhaustion.... We can chase a Title all we want but at the end of the day and many $$$$$$$$ later all we can do is still treat the symptoms. Be kind to yourself, i have come to the conclusion that i can't work like i used to or i am on the couch for a few days. Listen to your body... Endep helps me sleep. I am having surgeries as lupus is attacking everything inside me inclusive of my heart and all joints. My grandma had lupus and died as a result of infection that was not treated properly (she had the skin type) Hope this helps someone as you all help me and make me feel sane.... TAKE CARE EVERYONE

I've never heard of dysautonomia until now 🙂 They are thinking the pulmonary embolisms were from either birth control or my surgery I had 6 days before they happened. It was very scary. Thank you for all the advice.