1. < Osteoporosis & Bone Health

STOP! Don't do this if you have osteoporosis

Posted by isabelle7 @isabelle7, Jul 7 8:35pm

I am starting this thread hoping people will post things they've done that they have regretted, for one reason or another, when suffering from osteoporosis.

I'm going to start the conversation with a list of things we've learned already, and we are newbies!

1. Lift objects heavier than recommended by your physician (for my husband, that means nothing heavier than 5 pounds right now, with 3 fractures).

2. Don't bend at the waist! He got a fracture bending to empty the dishwasher.

3. Be cautious when driving - avoid rough roads, bumps, and go very slow over speed bumps.

4. We had planned to go on a boating tour (on a commercial fishing boat) on the ocean. After seeing a boat rocking and bouncing over choppy water we decided not to go.

5. Do not slouch when sitting in a chair or couch. If you're going to rest for any period of time on a couch elevate your legs (per our physical therapist).

6. Do not try any exercises until you have cleared it with your doctor, especially before your doctor confirms your fracture is stable.)

Please add to the discussion. I think this could be useful to people, especially people new to this.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

isabelle7 | @isabelle7 | Jul 12 11:49am
In reply to @drsuefowler "If you are on Tymlos or Forteo, don't take too much calcium. I was still trying..." + (show)
@drsuefowler

If you are on Tymlos or Forteo, don't take too much calcium. I was still trying to get 1200 MG between food and supplements. A 24 hour urine test showed way too much calcium. I cut back on calcium, had another urine test which showed less calcium but still too high. Now I don't take any supplemental calcium and need to have another 24 hr urine test. Osteo wants to take me off Tymlos in fear of kidney stones. I will go off it if my next test still shows too much calcium. Apparently, these medications increase the amount of calcium.

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@drsuefowler

Thanks for the info on calcium.

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isabelle7 | @isabelle7 | Jul 12 11:57am
In reply to @ldg001 "HA, as a matter of fact right now I am using on guard toothpaste too. Ohhhh..." + (show)
@ldg001

HA, as a matter of fact right now I am using on guard toothpaste too. Ohhhh yes, they have many other products. go to Doterra.com and check out all they have, many different oils, nutrition, digestive care, skin care, spa, hair, and womens personal care, and more.

Good luck,
Blessings

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@ldg001

Thanks! I'm checking out the Doterra site.

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isabelle7 | @isabelle7 | Jul 12 12:00pm
In reply to @ldg001 "My gym exercises consist of shoulder press, lat pull-downs, bicep curls, and tricep extensions , incline..." + (show)
@ldg001

My gym exercises consist of shoulder press, lat pull-downs, bicep curls, and tricep extensions , incline press, chest fly machine, leg curls, leg extensions, there are just so so many.... sometimes I do the free weights. You need a trainer to be sure you are doing them correctly and not hurt yourself . You always stretch before to warm up and stretch afterwards to cool down. The resistance stretch bands are great. I dread going to gym, but after I'm there I feel great and glad I went. That's the hardest part just getting there. There is a great yoga book "Richard Hittleman's Yoga 28 day exercise plan. I believe you can get it on amazon. Always always start slow and only go as far as you can, with everyday you will be able to do a little more.

Good luck,
Blessings

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@ldg001

Thanks for sharing your exercises and also the yoga 28 day plan. I'm going to check it out.

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isabelle7 | @isabelle7 | Jul 12 12:08pm
In reply to @ldg001 "I use only Doterra products. What is do when I have a certain problem I google..." + (show)
@ldg001

I use only Doterra products. What is do when I have a certain problem I google which essential oil is good for such and such, and I read everything I can that comes up. I then go to the Doterra.com site and look for the oil or oils that were recommended and read whatever Doterra has on it, and go from there. I once had a boil, which I had never had and it scared me because I did not want to go to doc, I knew what they would do, lance it. I looked up oils that are good for that, and I happened to have some of them. I got rid of my boil in 3 days. It was unbelievable. I have a book called "Essentials of The Earth" available on amazon, it has tons of information, great, great book. I believe the latest edition is the 11th. It lists all kinds of illnesses and diseases and which oils to use. It also list all the different oils and what they are used for, how to use them and their safety. All oils should always be diluted, some are what they call "hot" and it will tell you about them and how to use. Please do your research, there is much to learn about them.
Good luck,
Blessings

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@ldg001

Thanks for the info on Doterra. I'm definitely going to check it out and do research. That's something I'm definitely good at - research - after having worked as a paralegal for years. I appreciate the details you've provided about the oils such as them needing to be diluted. I am totally new to oils so I know there's a ton to learn. From what you're saying and your experience it sounds like the time spent researching would be worth it.

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1 reply
isabelle7 | @isabelle7 | Jul 12 12:10pm
In reply to @jasperina "I take the supplements that are formulated by Keith McCormick from his company called Osteonaturals. I..." + (show)
@jasperina

I take the supplements that are formulated by Keith McCormick from his company called Osteonaturals. I take the Osteo Stim and the Osteo Sustain. I also take the collagen he sells, called Osteo Collagen Pep.
I experimented with different ones for a while but settled on these because they are formulated for bone health.
He has written 2 books about osteoporosis which I have found quite helpful.

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@jasperina

Thanks for the info. I'll check them out, including his book.

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isabelle7 | @isabelle7 | Jul 12 12:15pm
In reply to @ldg001 "OMG, I know exactly what he is going through. I have been on prednisone and it..." + (show)
@ldg001

OMG, I know exactly what he is going through. I have been on prednisone and it drove me crazy, I could not stay on it, and my doc saw how it was affecting me and took me off of it. Yes, steroids are so bad for us, and I have taken plenty of those injections and try to avoid them if I can. Sometimes they are just not avoidable. I wish you both well.
Blessings

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@ldg001

Taking my husband off the prednisone unfortunately is not an option at the moment. However, we are doing a taper and he's down from 80 mg per day to 17.5. We will continue to taper until he can go off of it, as long as he doesn't have a relapse. He's taking Actemra which is a weekly injection the FDA approved for GCA and it helps with the tapering of prednisone. It comes with its own side-effects but sometimes you have to weigh the risks vs benefits. I wish you well too.

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1 reply
teb | @teb | Jul 12 12:22pm

Just a note on being cautious when choosing essential oils. doTERRA in particular is a multi-level marketing company and they have been known to promote unfounded claims. From what I understand, their oils are not organic and the phrase "certified pure therapeutic grade" is actually a made-up marketing slogan that is not an industry certification. Essential oils can be hazardous if used internally and can also be irritating when used externally. Really important to get quality oils along with advice from knowledgeable herbal practitioners on their use, efficacy and most importantly, safety.

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isabelle7 | @isabelle7 | Jul 12 12:22pm
In reply to @cehunt57 "@isabelle7 I saw my endocrinologist yesterday, had a DEXA bone density scan and a Prolia injection...." + (show)
@cehunt57

@isabelle7 I saw my endocrinologist yesterday, had a DEXA bone density scan and a Prolia injection. I don’t know if Prolia and Forteo are basically the same. I just know they both are used to treat osteoporosis. Everybody’s situation is different. I also have diabetes and stage 4 chronic kidney disease (CKD). Before I started Prolia I checked with my nephrologist that Prolia would be ok with the CKD.
If you are interested in considering Prolia, you should ask your endocrinologist how it compares to Forteo and Reclast.

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@cehunt57

I'm sorry to hear you have diabetes and kidney disease. I wish you the best of luck and healing. I will contact his endocrinologist to see what she thinks about the Prolia.

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ldg001....Laurie | @ldg001 | Jul 12 12:27pm
In reply to @isabelle7 "@ldg001 Thanks for the info on Doterra. I'm definitely going to check it out and do..." + (show)
@isabelle7

@ldg001

Thanks for the info on Doterra. I'm definitely going to check it out and do research. That's something I'm definitely good at - research - after having worked as a paralegal for years. I appreciate the details you've provided about the oils such as them needing to be diluted. I am totally new to oils so I know there's a ton to learn. From what you're saying and your experience it sounds like the time spent researching would be worth it.

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Yes, there is a lot to learn and really worth researching. Many are against and/or do not believe, but I do what is best for me. They have certainly given me a better quality of life and have been worth the risk of "dangers"......
My neighbor got me started on the oils, my first one was Frankincense. She had a kidney disease, and was on so many medications that were making her sick. One of those was prednisone . She was young and was not done with having a family, but was told not to get pregnant due to the medications. On some of her family's urging she starting treating herself with certain oils. In one month she got off of all her meds, left her doctor stunned , he could not believe it. Of course she still continued to see her doc and get regular checkups to make sure all was ok. In a few months she went on and had a child, and later another after that. She no longer has a kidney problem. A friend of mine had her husband in hospital with cancer, her doctor told her to put the frankincense on bottom of his feet and at the area where his cancer was. Unfortunately he didn't make it, he was too far gone. Some of these oils are like antibiotics and very powerful, we have to be careful on their use.

Good luck

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1 reply
ldg001....Laurie | @ldg001 | Jul 12 12:35pm
In reply to @isabelle7 "@ldg001 Taking my husband off the prednisone unfortunately is not an option at the moment. However,..." + (show)
@isabelle7

@ldg001

Taking my husband off the prednisone unfortunately is not an option at the moment. However, we are doing a taper and he's down from 80 mg per day to 17.5. We will continue to taper until he can go off of it, as long as he doesn't have a relapse. He's taking Actemra which is a weekly injection the FDA approved for GCA and it helps with the tapering of prednisone. It comes with its own side-effects but sometimes you have to weigh the risks vs benefits. I wish you well too.

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I understand, we do what we need to do.
Doterra used to have a site that was called "everythingessential.me"...... it was a great and helpful site, but the FDA made them take it down. I used to use it almost daily, it was a great learning tool. The good ole FDA....UGHHHHH!

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