Is it lung Cancer?

Posted by darlenecaywood164 @darlenecaywood164, Jun 25, 2023

I did blood work to check my liver function and cbc and results came back showing signs of lung disease within a week had XRay and CT scan no contrast that shows innumerable nodules and enlarged lymph nodes and a mass so now have to have a pet scan to see what's going on? Dr. Wrote either infection or malignancy on my CT scan results? What does this all mean, my anxiety is through the roof, I want to talk and get answers, so stressed. If it is lung cancer can you work while doing treatment?

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@lls8000

Welcome to Mayo Connect @burdyblue. As others here have mentioned, your primary doctor is recommending a pulmonologist because they may be able to perform a biopsy. Those results should tell you if you are dealing with a benign nodule (quite common), lung cancer, or breast cancer that has spread to the lung. All of those three would be treated differently.
A PET scan will show the level of activity within the nodule, which is also helpful in determining the next steps.
Try to focus on what you know to be true, and not letting your mind wander.
Has a PET scan been ordered and scheduled?

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Thank you so much, Lisa. You are right, focus on what I know to be true. I have a PET scan July 9 and am going to talk to my primary doctor about choosing a pulmonologist who can help with a biopsy. I understand that now and appreciate the information. I got overwhelmed with anxiety. Will take it one step-at-a-time and grateful for your responses. Thank you. Burdyblue.

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@vic83

I agree with @jonijean, you need to see a Pulmonologist, and be sure it is one with focus on lung cancer...because Specialists have subspecialties...one needs the professional with real knowledge.
Your situation illustrates the importance of following one's test results and advocating for ones 'self. Medicine is a broad subject, no doctor has knowledge of it all, it is up to the patient to be sure that there is follow-up in the right directions.

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Thank you for emphasizing the need for a pulmonologist with a specialty in lung cancer and for the kudos on advocating for one's self. Navigating the health care system in itself produces angst for me, all the "waiting." Will do my best. Many thanks vic83.

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@flusshund

@burdyblue, not knowing is the hardest part of being a cancer survivor. Try not to let your imagination run away with you. After 7 years, my policy is that if my doctors do not definitively tell me that I have cancer, then I'm still cancer-free. I've had 2 times where my doctor saw something suspicious that turned out to be benign.

The only thing a PET scan will tell you is if the area is absorbing sugar. The body absorbs sugar locally for only three reasons: inflammation, infection, and metastasis. Except for the brain, which is using sugar all the time, which is why they don't bother doing a PET scan of the brain. So, in answer to your first question, no, a PET scan will not tell you what type of cancer. But it WILL tell you whether the nodule warrants further investigation. If they see a "lot" of sugar being absorbed, they'll investigate further, which could be a biopsy.

Your primary doctor is right. Your next step is to talk to a pulmonologist. If your primary did not give you a referral, ask her to. Try to hold on to the fact that, at the moment, you don't have cancer!

Full disclosure: I am a doctor, but not a medical doctor. I can only share my and others' experiences, what my doctors have told me in my last 7 years of having lung cancer, and what I'm learning as a patient research advocate.

Good luck, and let us know what you learn.

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Thank you, Matthew K. You are right, not knowing is angst. But knowing, too, is not easy, but I did survive cancer twice and am grateful for treatments that gave me more years. Your explanation of what the PET is for is very helpful. Interesting our brains use sugar all the time. Good to know to go to a pulmonologist first and will let you know in a few weeks how the test went. Thank you for your advocacy and reassurance. Wishing you continued strength.

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@jonijean

First, you need to get a lung doctor. I'm guessing by "1 1/2" you mean inches? Because results are usually in mm or cm's. Nodules can be infection or inflammation. While a PET scan doesn't diagnose cancer 100% it helps the doctor determine next steps. First, make an appointment with a lung doctor. He can discuss the scans and determine a plan for you. Let us know what he/she says.

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Dear jonijean, thank you.
Yes, in inches, not centimeters. (converted them)
I am going to get a pulmonologist/lung doctor with the help of my primary doctor as you and others recommend, so thank you for that. I felt very confused initially and full of anxiety, thus I probably gave too much info in my post looking back. I'm coping better this weekend. Thank you for responding and will let you know what I find in mid July.

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@burdyblue

Thank you for emphasizing the need for a pulmonologist with a specialty in lung cancer and for the kudos on advocating for one's self. Navigating the health care system in itself produces angst for me, all the "waiting." Will do my best. Many thanks vic83.

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I started with shortness of breath and my Primary did not have an appointment and sent me to Urgent Care. UC chest x-ray was abnormal, so I told them to set me up with Pulmonologist, why waste time going back to Primary?
I can self-refer. The first local appt was with Pulmonologist with
expertise in asthma not lung cancer. She ordered CT scan (abnormal) and then PET scan (recommended by CT scan). I read the results and knew I was dealing with possible lung cancer, so I told the Pulmonologist to forward scans to Mayo Clinic because I knew she was not expert in lung cancer. The CT scan described the nodules and ground glass, and the PET scan confirmed the possible cancer and also told doctors that my probable lung cancer had not spread outside the lung. That decided my treatment options...I was good candidate for surgery which I had within weeks. An experienced Specialist is important because they can avoid unnecessary tests...Mayo did not do a needle biopsy on me because they knew immediately what I had. Surgeon told me 80% chance it was cancer. They did robotic biopsy and removal of lung cancer in one procedure.

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@burdyblue

I am having a PET/CT with my primary doctor in 2 weeks since a recent non contrast X-ray shows a 1 ½ by ¾ spiculated mass or nodule in my upper left lung that grew in the last three months from a low dose -ray I had last February. I'm not optimistic that is is benign. I am a 2-time breast cancer survivor but smoked also, so I would like to know, please, will a PET/CT be able to tell me if it is breast cancer spread or from smoking? Will there likely be other kinds of tests I will need for that, such as what? My first breast cancer was a lumpectomy with no positive nodes and radiation only. The second time, 12 years later, a mastectomy with one positive node. My last MRI of the breast recently was totally okay. I am anxious because I also don't know what kind of doctor to go to for answers. M.D. Anderson Cancer lung people here tells me they only receive patients with a positive cancer biopsy, so that's out. Do I go back to the surgical oncologist who did my mastectomy, or maybe my breast oncologist? My primary first said I need a pulmonologist. I'm anxious. and I would feel more at ease if I understood what the next steps are supposed to be and what doctor would be the fastest route to diagnosis and treatment since there are two possibilities as to what the source of this mass might be. Alls my primary did was sent me my results on a patient portal stating the lung mass is suspicious--no call, no specific dr. recommendation, so I was disappointed. I had to tell her get me the PET/CT that the radiology report recommended as the next step. Thank you.

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pullminologist!

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@lls8000

Welcome to Mayo Connect @burdyblue. As others here have mentioned, your primary doctor is recommending a pulmonologist because they may be able to perform a biopsy. Those results should tell you if you are dealing with a benign nodule (quite common), lung cancer, or breast cancer that has spread to the lung. All of those three would be treated differently.
A PET scan will show the level of activity within the nodule, which is also helpful in determining the next steps.
Try to focus on what you know to be true, and not letting your mind wander.
Has a PET scan been ordered and scheduled?

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Hi again, Lisa.

My PET scan with contrast shows a 2.7 x 1.6 mass that spans 3.3 cm when accounting for a groundglass component which is how important I don't know. No cancer seems to show up elswhere in the body, so this mass looks to be a "developing second primary of pulmonary origin" it was noted in the report , so I think it indicates it's not from my previous breast cancers from a good while ago. I smoked and have mild emphysema, too. I had a breast MRI recently with nothing there. My next step is a pulmonologist who will do a recommended biopsy of the nodule or mass. My primary told me she did the referral, but the pulmonologist got no referral, so I have to bug the primary once again. A call to a multidisciplinary center at UT also says it's booked through November!

My primary says the mass is big. (??) On a former CT w/o contrast, the mass was said to be spiculated which is not good, but on this PET scan, no mention of that, only groundglass is noted. What is groundglass, please? Next step, pursue a pulmonologist and biopsy ASAP I hope. Thank you for the support.

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@burdyblue

Hi again, Lisa.

My PET scan with contrast shows a 2.7 x 1.6 mass that spans 3.3 cm when accounting for a groundglass component which is how important I don't know. No cancer seems to show up elswhere in the body, so this mass looks to be a "developing second primary of pulmonary origin" it was noted in the report , so I think it indicates it's not from my previous breast cancers from a good while ago. I smoked and have mild emphysema, too. I had a breast MRI recently with nothing there. My next step is a pulmonologist who will do a recommended biopsy of the nodule or mass. My primary told me she did the referral, but the pulmonologist got no referral, so I have to bug the primary once again. A call to a multidisciplinary center at UT also says it's booked through November!

My primary says the mass is big. (??) On a former CT w/o contrast, the mass was said to be spiculated which is not good, but on this PET scan, no mention of that, only groundglass is noted. What is groundglass, please? Next step, pursue a pulmonologist and biopsy ASAP I hope. Thank you for the support.

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Hi @burdyblue , I agree that you shouldn't wait to see a pulmonologist until November. There may not be much (if any) growth during that time, but for your own mental health, it's best to have answers sooner.
Generally anything over 1 cm is up for discussion to be biopsied. The PET isn't usually the best scan for measurements to the mm level, so try not to get too hung up on that. The PET is looking to see if any other areas glowed on the PET, and the level of that glow (or uptake) to the nodule/s. The 'ground glass' is an area that's a bit hazy, it's not black like your healthy lung tissue, but it's not super defined like the nodule either. It can indicate a questionable area, so the radiologist noted that. It doesn't necessarily mean that it was or wasn't there on the original CT, as some radiologists are more detailed in their reports than others. The pulmonologist should be able to compare the CT and the PET, to tell you if the ground-glass area is new, or just something that wasn't noted in the CT report. It may just be your body reacting to the foreign nodule in your lung in the form of inflammation.
Don't blame yourself for smoking. Anyone with lungs can get lung cancer. But we can't assume that all nodules are cancerous either. At this point, we know that there is something that needs more investigation. The waiting will be the hardest part, so I'm hoping that you can find a pulmonologist that can see you sooner. Until then, work on a list of questions for the appointment to make sure you don't miss anything in the moment. Do you have someone that can go with you too?

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Oh, thank you very much for the encouragement. Great idea to work on a list of questions for the appointment. My spouse is able to go with me for support, yes.

What do you mean, please when you say anything over 1 cm is up for discussion to be biopsied? They might not biopsy something?

Thank you.
burdyblue

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@burdyblue

Oh, thank you very much for the encouragement. Great idea to work on a list of questions for the appointment. My spouse is able to go with me for support, yes.

What do you mean, please when you say anything over 1 cm is up for discussion to be biopsied? They might not biopsy something?

Thank you.
burdyblue

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@burdyblue, the size of the nodule can come into play when a pulmonologist is determining the next steps. Sometimes they want to wait and see if it grows. In that case they may suggest waiting ~3 months and doing another CT scan. Personally, I have had a .8cm nodule biopsied by robotic bronchoscopy, but I was already a lung cancer patient, so they were 90% sure that we were dealing with cancer recurrence. It turned out to be fungal, not cancer.
Your primary nodule is over that questionable point.

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