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Anyone with diagnosis of sarcoidosis?

Autoimmune Diseases | Last Active: Nov 7, 2023 | Replies (15)
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@sanae96

I ask for support from anyone who has been diagnosed with the same disease, especially if the sarcoidosis virus has spread to the nervous system and half of the face has been paralyzed. Is there any hope of treatment and a return to normal? Please help morally.

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Replies to "I ask for support from anyone who has been diagnosed with the same disease, especially if..."
Sue, Volunteer Mentor | @sueinmn | Jul 12 9:33am

@sanae96 Welcome to Mayo Connect, a community of patients and caregivers who support one another in our health journeys. It is scary to be diagnosed with a new and rare condition, which is why people often come here for answers.
First, a little about sarcoidosis - it is an autoimmune condition, where cells in the body attack each other causing some of the symptoms you describe. There are treatments available to relieve many of the symptoms.

Since it often affects the lungs, I have included this link, where you can learn a little more about it.
https://www.lung.org/lung-health-diseases/lung-disease-lookup/sarcoidosis/learn-about-sarcoidosis
Here are two discussions on Mayo Connect among people who have Sarcoidosis:
https://connect.mayoclinic.org/discussion/anyone-with-diagnosis-of-sarcoidosis/
https://connect.mayoclinic.org/discussion/sarcoidosis-treatment
I hope this will connect you with others who have the same experiences as you, and can offer their support.

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