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Has anyone had surgery for Apical Hypertrophic Cardiomyopathy
Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 28 9:03pm | Replies (46)Comment receiving replies
I had Dr Dearani at the Mayo Clinic perform the surgery. I had both the apical and septal myectomy. My previous Dr., less than a year ago, did a septal myectomy and cut what would be about the size of a baby finger. Dr Dearani took out what would be the size of 2 hands. I am still recovering but to think there was so much more (10x more) is alarming. I did not have relief from the first septal myectomy ( which I think makes sense)) given how much there was to still take out.
Replies to "I had Dr Dearani at the Mayo Clinic perform the surgery. I had both the apical..."
This seems to be such a common story with myectomies at a center who doesn’t routinely do a lot of these. Makes me
Wonder if they’re just doing them to get their numbers up rather than referring to a more
Experienced surgeon for this highly specialized procedure to give the patient the best chance.
Hi, i would like to ask about Surgical Apical Myectomy. What is your experience of this Intervention & what potential benefits have you gained?
Hi, what symptoms were u experiencing prior to Apical Myectomy?
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Dr Dearani is the best! You could not have been in better care @dbrima. And your story is the perfect example of how important a Center of Excellence is for a precision surgery like a septal myectomy. The best thing you can do is research and find out how many a facility has done, even if they call themselves a Center of Excellence or a Heart Institute.
You were right all along, you knew you didn't feel well. Thank goodness you are in a better place now. I hope you are doing better. And you are connected to the Mayo Clinic now, which is a blessing!