1. < Osteoporosis & Bone Health

Dosage Adjustments On Tymlos Pen

Posted by julieann9 @julieann9, Apr 16, 2023

I recently started using the Tymlos pen. I am on the beginning of
the second pen. I have been on the full dosage and the
side effects have been horrendous. I am 5 foot, 1 inch and
weigh 110 pounds. I asked my doc and the pharmacist at the
specialty pharmacy about starting at a lower dose. They both said
the pen only administers the full dose.
Now I am reading that people have adjusted the dose on the
Tymlos pen by using clicks. Can someone please explain to me
how to do this. Your help is much appreciated. Thanks.

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windyshores | @windyshores | Jul 11 8:31am
In reply to @beanieone "Hi @windyshores When I was using Tymlos, the injection nurse at the pharmacy told me to..." + (show)
@beanieone

Hi @windyshores

When I was using Tymlos, the injection nurse at the pharmacy told me to throw the pen away after 30 days, even if there was med remaining in the pen. In checking the Radius website, it states that the pen “expires” and should be discarded after 30 days as well. I don’t know if the reason behind it is to make sure they dispense the max number of pens during treatment ($$$$$) or if the meds become less effective after that timeframe.

Anyone have any thoughts or info to share?

Hope everyone is cool under this hot July sun. Cheers!

Jump to this post

My doctor, the company and the pharmacist all told me that it is fine to use it past 30 days if it is refrigerated the whole time.

REPLY
zygote | @zygote | Jul 11 10:43am
In reply to @joniterry "Hi I started Tymlos today I used 4 clicks because I am a small person and..." + (show)
@joniterry

Hi I started Tymlos today I used 4 clicks because I am a small person and want to step into possible side effects slowly. I dis have Hr of 106 and pain over my sacrum for maybe 10 min other than that I was really tired later on in the day...anyone have this? I would rather dose at bedtime could I do another 4 clicks tonight to change over???

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I have been using Tymlos for almost 3 weeks. I didn't know that I could lower the dose and started with 80 and my heart went wild, pounding and pressure/pain. This forum suggested I go to 40 (4 clicks) and I have been doing that but my heart is still thumping and irratic for about an hour after taking it. I am currently wearing a holter monitor and will see what cardiology has to say today. I would not increase to 6 yet if I were you. Stay on 4 clicks (40 mcg) for several days to see if the effect on your heart lessons. Good luck.

REPLY
drsuefowler | @drsuefowler | Jul 11 11:35am
In reply to @beanieone "Hi @windyshores When I was using Tymlos, the injection nurse at the pharmacy told me to..." + (show)
@beanieone

Hi @windyshores

When I was using Tymlos, the injection nurse at the pharmacy told me to throw the pen away after 30 days, even if there was med remaining in the pen. In checking the Radius website, it states that the pen “expires” and should be discarded after 30 days as well. I don’t know if the reason behind it is to make sure they dispense the max number of pens during treatment ($$$$$) or if the meds become less effective after that timeframe.

Anyone have any thoughts or info to share?

Hope everyone is cool under this hot July sun. Cheers!

Jump to this post

Beanieone,
I don't think the pens last much longer than 30 days. I was on 2 clicks and used the pen for 60 days. When I started the next pen all of my side effects came back, so I figured it was stronger. I always refrigerate. Now I'm on 4 clicks and only let it go afew days or a week past 30 days, and I can't tell any difference with the new pen.

REPLY
windyshores | @windyshores | Jul 11 8:42pm

@zygote maybe you could go down to two clicks for a week or two and move up more slowly.

I used pens for 5 weeks. With the approval of doc, and Radius. But only if refrigerated and I kept it cold when I visited kids with cold packs and cooler (wrapped the box in a hand towel).

REPLY
Karen Anderson | @fresian1 | Oct 1 5:36pm
In reply to @windyshores "The pen has 8 clicks. Move the dose slowly and you will feel and hear the..." + (show)
@windyshores

The pen has 8 clicks. Move the dose slowly and you will feel and hear the clicks. You can start as low as two clicks. and my doc was happy with 6 longer term (though I did get to 7 and even 8). Side effects tend to ease at each level, after a week or two. Tymlos has made me a lot stronger so it is worth it to try and stick with it.

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Hi,
I have really appreciated the info about starting with a lower dose, letting your body adjust. I did my first dose today. I believe I was one click below the full 80mg dose. But I didn’t feel anything. No dizziness, no rapid heartbeat, no headache or nausea. I will try again tomorrow at the same dose.

REPLY
1 reply
windyshores | @windyshores | Oct 1 5:57pm
In reply to @fresian1 "Hi, I have really appreciated the info about starting with a lower dose, letting your body..." + (show)
@fresian1

Hi,
I have really appreciated the info about starting with a lower dose, letting your body adjust. I did my first dose today. I believe I was one click below the full 80mg dose. But I didn’t feel anything. No dizziness, no rapid heartbeat, no headache or nausea. I will try again tomorrow at the same dose.

Jump to this post

@fresuab1 if you have no reaction to 70mcg that is great! I had 20% gain in my spine on that dose. You will probably be able to do 80 anyway.

REPLY
1 reply
Karen Anderson | @fresian1 | Oct 1 7:20pm
In reply to @windyshores "@fresuab1 if you have no reaction to 70mcg that is great! I had 20% gain in..." + (show)
@windyshores

@fresuab1 if you have no reaction to 70mcg that is great! I had 20% gain in my spine on that dose. You will probably be able to do 80 anyway.

Jump to this post

Well, I may not have judged the clicks correctly. I will go more slowly next time. I went all the way to 80 and then to what I thought was one click down from there.

I also requested the extra fine needles based on advice I found here. I hardly felt the injection, which was nice.

REPLY
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