Hello @airdelivery and welcome to the PD support group on Mayo Connect. I'm sorry to hear that you feel in such a dilemma regarding treatment for the Parkinson's symptoms. You said in your first post, "I was told that this medication can cause some pretty bad effects in people with PTSD." I'm just wondering if that information came from a physician or other medically trained support person?
As you mentioned that you have PTSD, I'm thinking that you have (or had) a connection with a mental health professional. If so, I would consider talking to that person to inquire if the PD medication that you have been prescribed would have an adverse effect on PTSD. Do you have mental health professional, that you can talk to about this?
We have a discussion group where other veterans have discussed their exposure to Agent Orange and Parkinson's. Here is a link to one of those discussion groups,
https://connect.mayoclinic.org/discussion/parkinsons-agent-orange/
Here is some general information about Agent Orange and health problems from the Cleveland Clinic website:
https://my.clevelandclinic.org/health/symptoms/24689-agent-orange-effects
Regarding finding an appointment with a movement disorder specialist who might have experience with patients with Agent Orange exposure, I'm wondering if the VA would have a neurologist with this experience? If not, you might consider calling a health institution that is considered a Parkinson's Center of Excellence. Mayo Clinic has three locations where they treat PD. Here is a link with information for obtaining a Mayo Clinic appointment, http://mayocl.in/1mtmR63.
If you are not able to be seen at Mayo Clinic, please consult The Davis Phinney Foundation, to see where there might be a PD Center of Excellence nearby. Here is a link to their website, https://davisphinneyfoundation.org/. You will see a toll-free number on the top of the first page of the website. If you call them, they may be able to assist you in finding a movement disorder specialist who can help. Please know, however, that it will take time to get an appointment with a specialist.
As this is your first post on Mayo Connect, please share as you are comfortable doing so, how long ago the PD symptoms began. What is the most difficult symptom you are experiencing right now?
@hopeful33250
We live in Texas and have UTSW and Baylor Scott & White facilities available. Unfortunately, my husband doesn’t want to participate in any programs for PTSD, etc. Thanks for your reply.